Protein in Urine

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couchtater
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Date Joined Jul 2009
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   Posted 2/12/2013 7:17 PM (GMT -6)   
Well, my protein has rose to 30 in my urine. smhair
 
Five months ago I had a 24 hr collection done after 2 weeks on lisinopril and it was less than 6. I had to stop the lisinopril because it aggrevated my asthma.
 
I'm supposed to see my kidney doctor in three weeks for my 6 month check up. I'm scare she's going to do a biospy.$$$$$ shakehead
 
Should I call her early and tell her the lung doctor took me off of the lisinopril? Also should I show her the UA report the Rheumy just took 2 weeks ago? confused
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 2/12/2013 9:38 PM (GMT -6)   
Hi Joy,
 
     I would certainly get in touch with her sooner than later.  I know that you are worried that she might do a biopsy, and yes, that can be expensive.  But your health and well-being are soooooooooooo important!!  How are you feeling???
 
Laura

Barbara Lee
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Date Joined Sep 2003
Total Posts : 2889
   Posted 2/12/2013 9:55 PM (GMT -6)   
Hey Joy,

I agree with Laura I'd contact my Dr sooner rather than later. I know funds are an issue but our health out weighs what it's gonna cost to help.

I'm faced with a huge copayment for one of my drugs to treat my warts. My hubby said we will do whatever needs to be done for my health. Of course, we now know that this drug should NEVER be given outside of the hospital.

I hope things straighten out with your kidneys. I'll keep you in my prayers.

Hugs,
Barbara

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/13/2013 12:48 AM (GMT -6)   
I'm calling her in the morning. I'm not thrilled but I guess I will go ahead and get it done.

Any of you ever have a kidney biospy???

I'm a little scared of any invasive procedure. It took me a full year to get up enough nerve to go forward with my stomach surgery. I know this will be nothing like it but I do like to know what to expect. I might have to ask for some knock out pills or at least some "high flying" drug.

I'm trying to get on charity with the local hospital. Maybe I can get approved for it before the procedure? (fingers crossed)
 
PS. I just read an Xray report from my lung doctor that was taken back in December. "Stable Mild Cardiomegaly"-This means my heart is slightly enlarged. shocked
I saw her assistent at our last appointment and she didn't mention it. nono
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Post Edited (couchtater) : 2/13/2013 12:20:59 AM (GMT-7)


bluejeans
Regular Member


Date Joined Dec 2012
Total Posts : 269
   Posted 2/13/2013 8:13 PM (GMT -6)   
Are you taking and prescribed arthritis meds are over the counter naproxen as these can casue protein in the urine?
I had a liver biopsy. They went from the jugular down to the liver. I was awake but in lala land. It was not bad at all. They should do something similiar for the kidney procedure I would think as far as sedation. My biopsy was fine.
Post lymphoma, Spleenectomy, Lupus, Sjorgrens, RA, Anti-phosphoid syndrome, Fibromyalgia, GERD, short bowel syndrome, scolisis, arthritis of spine, spondylosis, splondylesis, DDD,DJD

Faith in God, the love of my family and a good attitude keeps me going.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/13/2013 9:07 PM (GMT -6)   
I'm not allowed anti-inflamamatory meds. Kidney doctor took me off of them 5 months ago.
My only pain meds are tramadol and gabapentin. Sometimes I take a tylenol.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

bluejeans
Regular Member


Date Joined Dec 2012
Total Posts : 269
   Posted 2/14/2013 5:11 PM (GMT -6)   
Not the meds then. Hope they find out why and gwet this under control. Feel better soon.
Post lymphoma, Spleenectomy, Lupus, Sjorgrens, RA, Anti-phosphoid syndrome, Fibromyalgia, GERD, short bowel syndrome, scolisis, arthritis of spine, spondylosis, splondylesis, DDD,DJD

Faith in God, the love of my family and a good attitude keeps me going.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/14/2013 7:41 PM (GMT -6)   
I called the kidney doctor and she didn't see a need to see me before March 11th. She said if my blood pressure rises I'm to call her right away. My blood pressure has always be normal with no changes.

I go in 2 weeks to get the blood work and UA for her.

We'll see how things go then.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 2/15/2013 2:15 AM (GMT -6)   
Hi Joy,

I think it's a good sign that she's not rushing you into her office right away. Try not to worry to much, I know that hard not to do, but it may make you feel worse.

I'll be keeping you in my prayers and hope you're labs look better in two weeks and things will be alright.

Hope you are sleeping well, as you can see its 3:10 am EST for me and I'm wide awake, guess I'll need to ring for the nurse to give me some IV pain meds to help lessen my broken rib pain.

Hugs,
Barbara

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/15/2013 9:22 PM (GMT -6)   
My primary care doctor sent me a message that my labs were fine and there was nothing to worry about.
Even though my tryglicerites was 208. I wonder if I need to keep seeing him?
I'll see if the kidney doctor wants to change anything or concerned in 3 weeks. (fingers crossed)
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

lillash
New Member


Date Joined Dec 2012
Total Posts : 12
   Posted 2/16/2013 7:07 AM (GMT -6)   
Hi all,

I'm finally back online cool

I have had 2 kidney biopsies 2007 & 2012. Don't sweat it, its no biggie they will give a local anesetic n the entry is so small it doesn't hurt. The worse part is lying still n flat for a few hrs afterwards...boring :-)

Protein of 30 ain't that bad my level got to over 300 now its mid to low 200s. I have commenced a treatment plan of rituximab n chemo ( cyclophosamaide) which I have had 2 rounds n 4 to go however I missed round 3 as I have been ill with flu/cold symtoms. They are going to revisit my treatment in a month n c how I'm going so for now I just have to take it one day at a time.

You will b fine if u need to eventually have a biopsy its nothing to worry about.

Good luck, take care :-)
SEVERE LUPUS since 1994, Rashes, RA, Polyarthritis, Sicca Symptoms, Pluersy, Mouth Ulcers, Alopicea, Pleuisy, Pancreatitis, Pancytopenia, Epilepsy, Psychosis, Depression, Avascular Necrosis - bilateral hip replacements, Endocarditis, Lupus Nephritis IV & V, Dyslipidemia, Osteoprosis, Pericarditis, Recurrecnt Furuacles, Hepatitis, Neutropenia, Glactorrhoea, Cholecystitis

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 2/16/2013 5:29 PM (GMT -6)   
Protein of 30 is nothing. I have had my protein in the thousands...no worries. When it becomes critical, you will know. When my issues started, i had blood work and then had an emergency apt the next day and a biopsy the following day cause my creatinine went to crap. Don't worry about everything, it makes matters worse.
Amy
Lupus Moderater


dialysis from lupus nephritis

bluejeans
Regular Member


Date Joined Dec 2012
Total Posts : 269
   Posted 2/16/2013 9:39 PM (GMT -6)   
Couchtater
Your trycliderides count can be effected by what you ate the day before. If you ate candy or something sweet it will make the count higher. I did not know it was that sensitive until we dealt with some cardiac workups.
Post lymphoma, Spleenectomy, Lupus, Sjorgrens, RA, Anti-phosphoid syndrome, Fibromyalgia, GERD, short bowel syndrome, scolisis, arthritis of spine, spondylosis, splondylesis, DDD,DJD

Faith in God, the love of my family and a good attitude keeps me going.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/17/2013 10:05 PM (GMT -6)   
Thank You, everyone. I was going to ask what was a level to begin to fretting over.
My brother has kidney disease and he had a protein spill for years before he had ESRF.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

lupiememe
New Member


Date Joined Feb 2013
Total Posts : 5
   Posted 2/18/2013 6:42 PM (GMT -6)   
Hi Joy, I am a new lupus patient (dx sle lupus 11-12), only meds that I am taking are lodine (antiinflammatory) , lortab 7.5, plaquenil 400 mg a day, chlorzox 500 mg 3x a day, zyrtec, and a laxative. I just started taking the plaquenil on the 6th. My rheumy, who i seen on the 6th, told me that I would not feel the relief, if any, for 3-4 weeks from the plaquenil, he told me to continue the lodine, lortab, etc, all of my meds. After 9 days, so last friday, the 15th, my breast started hurting and burning, like when I was pregnant; no way i am pg..had hysterectomy in 06. And my eyes are burning, and i suffer from dry eye, and very dry skin. The most recent symptom is that my pee is light green now, and I have to pee alot. I am even leaking.
I am not sure who to talk to about this. I have been reading everyone's posts and i am just confused. :-/
I go see my primary tomorrow, whom I do not like. He wouldn't help me with my pain before I seen my rheumy, and I have been seeing him for almost 2 years. Can you or anyone who reads this help me? Thanks <3

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/18/2013 8:54 PM (GMT -6)   
You might have a bladder infection.
I'd go to an urgent care facility and ask to be checked for an infection.
I'd also find a different primary care doctor.
It will take a full six months for the plaquenil to fully kick in. You might start feeling a slight difference at 2 months.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

lupiememe
New Member


Date Joined Feb 2013
Total Posts : 5
   Posted 2/19/2013 9:27 AM (GMT -6)   
Thanks Joy for your reply. I will have my primary check my urine today. it seems that i get more answers from my support groups than I do from the drs. What is there deal? I don't agree with the medical field about talking to patients about just the diagnosis. They never talk to me about what to expect. Even if i ask. I did complain to my primary about just being 'sick', and he said, "oh honey, it's only gonna get worse, alot worse!" I agree with you, I do need a new primary. I told him that he was fired last month, I should have looked for another one then.

So why would my rheumy tell me that it only takes 3-4 weeks for the qlaquenil to kick in? he said that i would be able to tell results my next appt, which is March 27th.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 2/19/2013 10:30 AM (GMT -6)   
Some people see results with plaquenil as soon as 3-4 weeks, I don't think your rheumy was in error at all. And, a lot of us don't think it is doing anything, so we stop taking it, and then we find out what a mistake that was, it really was doing a lot!

Also, Plaquenil is taken to inhibit disease progression, it isn't something where one really expects symptoms to be decreased. Generally some sort of anti-inflammatory is needed (Feldene, Prednisone, etc), and perhaps something more aggressive like Cellcept, Imuran, or MTX.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

lupiememe
New Member


Date Joined Feb 2013
Total Posts : 5
   Posted 2/19/2013 12:29 PM (GMT -6)   
So do you know what the results will be? i am telling you that no one tells me anything, and if i talk to my family, they all try to get me not to take the meds to do herbalife. but my insurance pays 98% of everything and pays nothing on herbalife. so frustrated. i am very moody and i feel like i am slipping into a depression.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/19/2013 2:12 PM (GMT -6)   
Depression is part of this. You kind of morn your losses, but it's not the end of the world. You just have to adjust and continue on.

I started seeing a psychologist about 3 months ago and she is helping me learn to cope with my issues and all. You may want to see one.

As for herbalife, it is not a cure. There is no cure for Lupus yet. Maybe one day but not now. What you do is take it one day at a time and deal with what pops up. There will be times it goes quiet and you will feel good. Then it will flare up and you will feel rotten.
It is a roller coaster ride and you just need to hold on tight and don't let go of the bar. :)
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

lupiememe
New Member


Date Joined Feb 2013
Total Posts : 5
   Posted 2/21/2013 2:51 PM (GMT -6)   
Thank you Joy!
I have found my blood test results that was done in Nov, and this is what it says for my COMPLEMENT COMPONENT C3C 65 L & COMPLEMENT COMPONENT C4C 15 L & C-REACTIVE PROTEIN 0.10

Can you tell me what these mean?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/21/2013 6:16 PM (GMT -6)   
Were they in the normal ranges?
C3 & C4 will drop lower with autoimmune diseases.

I can't remember CRP means...it's something related to kidneys. Check with labsonline.com to see ranges and what the tests mean.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 675
   Posted 2/21/2013 7:15 PM (GMT -6)   
CRP refers to C-Reactive Protein. It's a marker for inflammation, and is often checked along with Sed rate when inflammation is suspected. Low complements often occur in autoimmune disorders and provide another clue. www.labtestsonline.org will give you more information.

Angel312
New Member


Date Joined Feb 2013
Total Posts : 13
   Posted 2/28/2013 10:52 AM (GMT -6)   
Just wanted to say "thank you" for the lab resource......I learn something new all the time. I think so many times we have to be our own advocates, because we don't ALWAYS get the answers we nd, or often forget to ask the 20 questions we have when we see the doc. I stopped seeing my ex-primary doc...got a divorce....LOL! He never had any answers for me. It seems I always end up at the Rheumy's because everything ends up being related to my Lupus?? Sorry for going on here...it just feels so good to talk about issues with ppl that understand;)
Lupus, Diabetes, Addison's Disease, RA, Bursitis, Spondylosis, Scoliosis, Degenerative Disk Disease, Spinal Stenosis, Bulging and herniated disks multiple levels, Compression fractures due to Osteoporosis caused fr Prednisone ;)

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/28/2013 5:25 PM (GMT -6)   
Talk away.
This is my venting place along with my therapist and family.

Yes, you do need to take a front seat in your care. Sometimes you drive, other times the doctor drives. You've got to just know when to give up the wheel and when to take over and stomp on the gas or brake. :))
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))
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