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Date Joined Sep 2005
Total Posts : 78
   Posted 2/18/2013 9:16 PM (GMT -6)   
I am would appreciate any input.  Here is my story.  In 1997, I was misdiagnosed and given a complete hystercotomy.  In 1998, I was diagnosed with Crohn's disease.  In 2001, I had a bowl resuccution.  In 2002, I went on Remicade.  A few times in the last 6 years, I have developed the hives and they remain for sometime.  I have had a couple of ANA test done in the past 6 years.  One was 1:320 and the other was 1:640.  However, I was told that didn't really mean anything because I had Crohn's.  In September 2012, I developed the hives horribly.  I had them daily on my arms, wrists, hands, chest, neck, shoulders, back and stomach.  My gastro  doctor took me off Remicade to see if this was the problem.   No change.  In October 2012, the dr ordered an ANA double stranded dna test.  It came back at a 15.  My gastro doctor said it could be drug induced lupus from the remicade.  Since September, I have developed fatigue to the point that getting up and getting to work takes my all.  My vision has became fuzzy. I have severe headaches, mouth ulceration, joint pain  and my fingers lock up.  Last month the dr ordered a colonoscopy, which showed that the Crohn's is active in my small intestines with several ulcerations.  Crohn's also causes fatigue, mouth ulcers, and depression.  He told me he was going to start me back on Remicade, but the insurance had to reapprove it since I had been off for 4 months.  He ordered more labs.  I went to my appointment today and he told me that my last ANA double stranded dna came back at 31 this time.  He wants to hold off on starting Remicade and refer me to a rhymotologist and see if he thinks I have actual Lupus and where to go from here.  Does anyone have any insight as to whether this maybe lupus? 
Thanks in advance for all of your time and consideration.

Forum Moderator

Date Joined May 2005
Total Posts : 7674
   Posted 2/18/2013 10:15 PM (GMT -6)   
I think seeing a rheumotologist is a great idea. Sounds like you have several symptoms that are shared across multiple diseases, and a rheumy will certainly help you get to the bottom of things!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde
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