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joel1003
New Member


Date Joined Feb 2013
Total Posts : 3
   Posted 2/26/2013 2:59 PM (GMT -6)   
Hello,
 
Im new to the forum and have a question or two.
 
I have been living with discoid lupus for about 3 yrs now.  I was wondering if anyone knew of a treatment that would diminsh the appearance of scars caused by my lupus?  I have 3 round scars on my forehead near the hairline and one on my nose.
 
Also, what is the best over the counter cream to help with the rash outbreaks?
 
Thanks,

Tinkerbee
Regular Member


Date Joined Feb 2013
Total Posts : 59
   Posted 2/26/2013 4:24 PM (GMT -6)   
Hi Joel
I also have discoid and I have lot of scarring. My dermatologist has told me that any cosmetic procedure , for example dermabrasion, is too invasive and can cause a flare of lesions. Are you under the care of a dermatologist? For me, I was prescribed Plaquenil and given a script for Clobetsol ointment. They both have helped, but after a year, I am going to be as good as it gets. The scarring goes very deep into the dermis & hyperdermis layers. It has taken me a long time to come to grips with this dx and spent most of my time going to work and home andbecoming a recluse of sorts socially.
So now, I am beginning to go out more and have to be thankful that I could have systemic involvement and have it so much worse than I do.
I could have been burned in a fire and be totally disfigured. Maybe if you think of it that way, you'll see in time as I have that you and I pretty lucky we only have to deal with a few scars.
:)

joel1003
New Member


Date Joined Feb 2013
Total Posts : 3
   Posted 2/26/2013 6:46 PM (GMT -6)   
Where can I get this Clobetsol ointment?  Is it an over the counter medicine, or do I need a perscription?

Post Edited (joel1003) : 2/28/2013 8:55:48 AM (GMT-7)


Tinkerbee
Regular Member


Date Joined Feb 2013
Total Posts : 59
   Posted 2/26/2013 7:46 PM (GMT -6)   
Joel
It is a presciption and a very potent steroid. Do you have a derm? Is theat where you got your dx?

joel1003
New Member


Date Joined Feb 2013
Total Posts : 3
   Posted 2/28/2013 10:58 AM (GMT -6)   
Ok Im new to this forum thing and its lingo, so whats dx?

I have gone to a derm, but not on a regular basis. My discoid hasnt been that bad where I have to go regularly.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 2/28/2013 11:09 AM (GMT -6)   
Dx = diagnosis
Rx = Prescription
Rheumy = Rheumotologist

that's all I can think of just now...
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde
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