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Regular Member

Date Joined Jul 2012
Total Posts : 43
   Posted 3/4/2013 3:10 PM (GMT -6)   
I know the doctors say that lupus affects mostly the small joints, but does anyone have it affecting any of the larger joints or the spine? 

Forum Moderator

Date Joined May 2005
Total Posts : 7673
   Posted 3/4/2013 3:30 PM (GMT -6)   
In over 10 years with joint pain from Lupus, I have never heard this. I consider my hips, knees, and shoulders to be large joints, and they are quite involved, esp. my hip. I do have smaller joints as well -- feet & hand joints.

Hope that helps,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Veteran Member

Date Joined Apr 2006
Total Posts : 1335
   Posted 3/4/2013 4:51 PM (GMT -6)   
Lupus can and does attack any joint in the body.  For that matter, lupus can attack any part of the body.  Fortunately it does not attack everything in everyone.  One of my initial symptoms was joint pain....every joint in my body.
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 3/4/2013 6:19 PM (GMT -6)   
It goes after every joint in my body.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Regular Member

Date Joined Dec 2012
Total Posts : 269
   Posted 3/4/2013 6:49 PM (GMT -6)   
I had this discussion with my rheumy last week. She says its effects the feet, ankles, knees, wrists, hands, fingers and hips. It does not effect the back, or neck. She says that pain in me is from the scolosis, bulging disks, arthritis of the spine ddd etc.
Post lymphoma, Spleenectomy, Lupus, Sjorgrens, RA, Anti-phosphoid syndrome, Fibromyalgia, GERD, short bowel syndrome, scolisis, arthritis of spine, spondylosis, splondylesis, DDD,DJD

Faith in God, the love of my family and a good attitude keeps me going.

Regular Member

Date Joined Feb 2011
Total Posts : 399
   Posted 3/4/2013 8:21 PM (GMT -6)   
Lupus arthritis has primarily affected my feet, hands, shoulders, elbows and hips.  Osteo-arthritis has ravaged my back and knees.  When I flare, it can affect a few joints or sometimes almost all of them.

Regular Member

Date Joined Jul 2012
Total Posts : 43
   Posted 3/5/2013 10:04 AM (GMT -6)   
Thank you everyone!!

Regular Member

Date Joined Jul 2012
Total Posts : 73
   Posted 3/6/2013 10:12 AM (GMT -6)   
so when "we" flare do the joints actually look swollen? ive flared 2x's in the last 3 days, gone to the ER and the on call doctor said my joints werent swollen!!! So what was I flaring from? I have fibro but could it have been a fibro flare? UGH what to do!!! He gave me a steroid shot and a shot of morphine for the pain and on home I went only to get another painful flare the next day!
The offer still stands- John 3:16

New Member

Date Joined Sep 2012
Total Posts : 17
   Posted 3/6/2013 10:36 AM (GMT -6)   
My left knee looks swollen often. It's obvious when you compare to the right knee. I don't know if I would be able to tell if they were both swollen....unless I had skinny bird legs...which thanks to previous steroid script..I do not.
Currently prescribed Imuran 200mg daily and Plaquenil 400 mg daily.

Regular Member

Date Joined Jan 2013
Total Posts : 98
   Posted 3/12/2013 2:16 AM (GMT -6)   
Generally the joints away from the spines are affected.
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