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Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7720
   Posted 3/12/2013 11:33 PM (GMT -6)   
Terrible insomnia the last few days. My hip hurts...all over. Front, side, back and inside. Enough to cause my knee to hurt too. My teeth hurt. I may have some version of thrush as my mouth tastes metallic and there is extra plaque and nastiness in the AM. Some extra mucus in the female parts. My ear occasionally gets sharp pains but then I wonder if I've imagined them. My eyes are burning. My foot itches on the bottom, and my back gets SO stiff when I don't move every 5 minutes. My nose has painful sores that don't heal for months at a time.

My partner was just diagnosed with uterine cancer and we are waiting to see if radiation treatment is next. (My mother was diagnosed with uterine cancer when I was 4 - hysterectomy, radiation & chemotherapy then recurrence of some kind of cancer every 4 or so years for 25 yrs. I really don't want to be that kind of caregiver again.) So this is scary if I let my mind wander.

I don't seem to have any friends "with skin on them". Meaning that all my friends are now online, no-one much to talk to or do anything with except said partner who is now doing her own freaking out. Hip means I will probably permanently loose my walk/running friends.

No motivation to even clean up after myself in kitchen, etc. No appetite. Blah, blah, blah. I suddenly the other day noticed the yard tools in the dining room (normally they live in the water heater closet but had water heater replaced last week so they had to be moved), and realized at a gut level that "that is how hoarding starts" for people on those horrid tv shows. No motivation to put stuff away, then good stuff gets tangled up in bad, no motivation to sort & put away, then down the slippy slope we go...

I guess I need to do lots of things...get more depression meds, see an orthopedist about my hip, see a gp or maybe an ENT, hard enough just to find decent food for myself!

So, like I said, gripes and vents and I am in a major FUNK. Hope y'all are sleeping soundly tonight and that we all have better days tomorrow!

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7720
   Posted 3/12/2013 11:58 PM (GMT -6)   
And I forgot about the huge lump under one arm. Of course, sometimes it's there and sometimes it isn't. And oh yeah, I just realized I took my Vicodin AND my hip is still hurting. That's unusual -- ordinarily Vicodin takes the pain away...
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 3/13/2013 11:18 AM (GMT -6)   
Lynnwood,

wow, you have alot on your plate right now. Anyone would be overwhelmed. I have a few suggestions. For just now, forget about the stuff, and take care of yourself. The stuff will still be there when you are better able to handle it. I have a hip that hurts alot too, maybe not as much as yours, but gives me trouble sleeping because I can't lay on it. Have you tried putting a pillow between your legs, or better yet a body pillow if you have one, helps take some pressure off.

As for getting some sleep, my new favorite is Tylenol PM. No after grogginess, no script needed. I am not sure what meds your taking and if they are safe, but a friend of mine was allowed to take them while pregnant, so for me, I felt they were safe enough to try, and I got such a great night sleep.

Sorry to also hear about your partner, added stress for us just adds to all our ailments too. You really need to find something that will help you relax and focus on that. If you can relax, even if just for an hour or two that will help you. Whether it is something as simple as a bubble bath, reading a book, sitting outside enjoying the spring weather, or watching a TV program.
Hope you feel some relief soon.

Hugs,
Debbie

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7720
   Posted 3/13/2013 11:33 AM (GMT -6)   
Thanks, Debbie! A little support goes a long way!

The insomnia was *after* taking 300 mg of Trazodone -- my regular dose which is about 2x what most women take. Managed to sleep 10 hrs last night (well from 1am - 11am, not really night!) Now back to working on getting sleep moved to a more reasonable time slot.

Also the hip pain was after taking Vicodin -- again what usually takes care of it. I agree the stress is/was causing it to flare -- apparently this vent helped a LOT with stress reduction! ;)
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/13/2013 12:29 PM (GMT -6)   
((((((((((((((hug))))))))))))

I'd think I'd be overwhelmed too. Just take it one day at a time. I hope your SO will be okay.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2607
   Posted 3/19/2013 6:29 PM (GMT -6)   
Lynnwood, I'd be surprised if you Could sleep with everything you have going on. I hate to hear about your partner. I'm sad for anyone who has a cancer diagnosis, and not to take away from the seriousness of that, but you barely have the energy to take care of yourself right now. Take care.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin 1200mg, synthroid, spironolactone, actonel, niaspan, simcor, lunesta, cymbalta 90mg, norco 10, vitamin D, Calcium, Multi Vit. Fish Oil, low strength aspirin

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7720
   Posted 3/19/2013 7:55 PM (GMT -6)   
Thanks all. Now my body is acting out in other weird ways. (sorry, not comfortable discussing in open forum.) Hopefully thyroid and hormone tests will figure it out -- meanwhile no remedies for my extreme discomfort. Oh, my.

This too will pass.
Lynnwood

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7720
   Posted 3/20/2013 12:08 PM (GMT -6)   
Rheumy ran labs, found low potassium, prescribed supplement.
GP ran labs for hormones & thyroid, waiting on results.
Osteo - Appt tomorrow....gotta' get to the bottom of this hip pain!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde
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