Cursed I Never Get A Break

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Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 3/15/2013 1:28 PM (GMT -6)   
Just wanted to pass on an update. Last week I went into the military hospital for pain control of my three broken ribs.

I had an @** of a Dr, he made NO sense to me. He called in Pain Management to increase my pain meds to control my pain. Then three days later he attempted to imply that I was sick because I was depressed, and I need to be in a 12 step rehab program.

I was so upset and hubby wasn't to pleased with this jerks opinion and bed side manner. Psych came by to evaluate me for rehab, and said I have valid diseases that cause pain ans WASN'T a good person for rehab.

Then I came into NIH yesterday to have my bone marrow biopsy today. They made me NPO after midnight and I waited until noon, then I hear that the OR had an emergency and I couldn't get the biopsy done. This is the second time that they couldn't do it with anesthesia. They said we could try in April, I really need these results, so I proceeded with the biopsy without any sedation, I have to say I did some crying during the procedure.

With my ribs broke and almost laying on my stomach, then the biopsy, I was at a 10/10 pain wise. It's done and I'm praying that the biopsy is positive and they can figure out how best to treat me.

So please pray or send positive thoughts for postive biopsy results and a game plan to heal me. Ok gonna try to rest some as my back is hurting like heck.

Best wishes to all.

Hugs,
Barbara

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 3/15/2013 1:49 PM (GMT -6)   
Hey Barb,

Praying they can get this figured out. Sorry you have had such a rough time these last few years! My prayer for you is that you will be able to catch a break!! Much love and hugs
Amy
Lupus Moderater


dialysis from lupus nephritis

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/15/2013 5:19 PM (GMT -6)   
So sorry you've had to endure it without GA. It's a painful thing upon itself but then to have to lay on the sore ribs too. OUCH!

((((((((((((((gentle hugs))))))))))))))))

You sure need good new. I hope it comes soon.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 3/15/2013 7:12 PM (GMT -6)   
 
Hi Barbara,
 
     I cannot imagine what you are going through.  You have all of my support and the gentlest of hugs.  I wish I could do more.
 
Laura

cecee
New Member


Date Joined Mar 2013
Total Posts : 3
   Posted 3/16/2013 2:19 AM (GMT -6)   
im sorry you have a rude and uncaring doctor!! praying for you :)

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 3/16/2013 7:04 PM (GMT -6)   
That Dr needs a brain transplant!!!

Sure do hope you are feeling better SOON!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2607
   Posted 3/19/2013 8:31 AM (GMT -6)   
You'd think that with everything you're going through, you could at least catch a break and get a good caring doctor. Seriously, who does he think he is! Sending a gentle hug from me too. Hope you get the results you want.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin 1200mg, synthroid, spironolactone, actonel, niaspan, simcor, lunesta, cymbalta 90mg, norco 10, vitamin D, Calcium, Multi Vit. Fish Oil, low strength aspirin

omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 3/21/2013 8:53 AM (GMT -6)   
(((((((((((((( Hugs ))))))))))))))))))) Sorry to hear that you had a rude doc. He needs to go back to training and not practicing. Anyway, praying for you and hope you get the results you want.
DX SLE 1988; APS (Antiphospholipid Syndrome); High-Blood Pressure; levothyrodicine 75 mg; Cellcept 1500 mg; Warfarin; Calcium, Folic Acid 5 mg; Simvastin; Candesartan 4 mg; multi-vitamin

Worthit
Regular Member


Date Joined Nov 2011
Total Posts : 212
   Posted 3/21/2013 9:09 PM (GMT -6)   
Oh that has got to hurt!!! I hope that you can get your pain managed and after that biopsy I hope you get the results you need.
I'll say a prayer for you tonight!
Alone we can do so little, together we can do so much
Call me Jimmy;-)

Cirrhosis,osteoarthritis,back,knee,hip, extreme flat foot,falling arches, hammertoe,out-toing and bone spurs(will be requiring major foot surgery on both feet). Had kidney tumor removed.Neuropathy- deteriating nerves,Osteomyelitis and Insomnia Hoping to be diagnosed with a good sense of humor ;-)

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 3/21/2013 9:59 PM (GMT -6)   
Well still no results on my bone marrow biopsy yet, did get an email from the Dr's office she wants me to have blood cultures drawn out of my port site on Monday. I'll stop by the Same Day Hospital and have that done at 12:30 and then I'll be meeting with the Pain and Palliative Care folks at NIH.

They are planning on starting me on acupuncture ASAP, and I'm going to attempt to learn medical hypnosis, I'm willing to try anything at this point to get some relief.

Today, I met with my PCM who is an Internal Med Doc. She had made the arrangements for me to be admitted at the military hospital for pain control. I told her I wanted to talk about the jerk that took care of me while I was in the hospital. She replied to me, "I figured you'd want to talk about him". LOL Apparently, he called her and had a conversation with her. Like I mentioned this jerk implied that I didn't require oxygen, and he had the intern walk with me around the ward w/o oxygen, to see if my O2 stats dropped. My hubby walked with us, and when we got back to my room, I'm purple and the intern comments that, "well we can't take away your oxygen, your O2 levels dropped to 83%, guess you need it." nono nono nono nono nono WELL DUH I'm purple and struggling to breathe. How dare you make me walk w/o my oxygen.

Then this idiot Staff Dr tried to imply that I was depressed and that was why I needed to take pain medication, and that I needed to be admitted to a 12 step rehab facility right away. He kept going on about how much my Dr cared about me and how she asked him to look out for me. His parting shot as he left my room, in front of my hubby, was "SOMEBODY NEEDS TO BE THE BAD GUY HERE AND I'LL GLADLY BE IT."

So when I talked with my Dr today, she was really pissed off at him. She felt that he was questioning her ability to care for me and that he basically said she wasn't doing her job right. She was certain that I felt upset and that she was going to discuss things with him about his questioning her comptence, but couldn't do anything on my behalf except to say he upset me. She told me to contact a patient advocate and file a formal complaint about this jerk, I'm lucky that my hubby was a witness of his behavior towards me.

I had to go through two different evaluations by psychiatrist's to show that I did not need a 12 step program and that rehab wouldn't help me. That I have a terrible disease and it's very painful and I wouldn't manage w/o my daily pain medication.

I was worried that actually my Dr wanted me off them cause the jerk kept talking about her. She reassured me though, that if she felt I had a problem, she'd stop prescribing the drugs for me. She felt really bad that I had such a bad experience with this jerk.

Anyway, that's the update on me. I'm hurting like crazy tonight. My back, hips, shoulders, and up the sides of my neck are burning like crazy. I'm in desperate need of a massage, but with three broken ribs my massage therapist won't touch me yet. I still can't soak in a hot bath because of the site where they took my bone marrow out isn't closed up yet.

Hope you all have a good Friday.

Hugs,
Barbara

Post Edited (Barbara Lee) : 3/21/2013 10:11:41 PM (GMT-6)


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/21/2013 10:26 PM (GMT -6)   
I would definately file a complaint about that ugly doctor.

I hope you get some relief from all this pain.
((((((((((((((((((((gentle hug))))))))))))))))))))
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 3/22/2013 6:55 AM (GMT -6)   
So glad Dr B supported you!!!!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 3/22/2013 7:58 AM (GMT -6)   
 
 
Good God Barbara,
 
     To have to go through that when you are feeling so miserable.  I would definitely file a complaint.  It's amazing to me how insensitive some medical providers can be.  I am sending you some healing energy from the lovely redwood trees outside of my window.  They help me so much, especially when I am hurting emotionally and physically.
 
Love,
Laura

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 3/22/2013 2:39 PM (GMT -6)   
Thanks all for your continued support, it's a total shame when Doctors think that they are God's. I'm so relieved that my Dr is backing me.

I was up till after 1am this morning and got up at 6:30 to take my morning medication and give the cat his medication. Went back to bed and slept till 11. As soon as I got up my lower back and hips began to burn. I have to say starting my day out at a 6 out of 10 isn't a good sign.

I've not had a massage in over a month and I really need one, but Pam is afraid to work on me because of my broken ribs. Hurting 24/7 is really dragging me down I just can't imagine spending the next 20 years of my life like this.

Since being so sick as of late nothing but the bare minimum is getting done around the house, and I'm crazy with wanting to clean. My family call me a germ/clean freak, and I guess I am. I did manage to sit on a stool and wash down the kitchen counters and butchers block. I also washed what dirty dishes that we normally don't put in the dishwasher. I'm all tired from just that little bit.

I've asked hubby to sweep, mop, and vacuum the area rugs that are on the floor in the kitchen and breakfast area. He vacuumed the family room the other night. My daughter will be home on Spring break on Sunday, I'm going to offer to pay her to do some spring cleaning for me. I know she should do chores just because, but I'm wanting extra stuff like windows washed, curtains taken down and washed, you know spring cleaning.

I'm sitting here waiting for my pain medication to kick in and give me some relief. I guess I should finish up on my posts here and then balance my check book. I hope you all have a good weekend and I really hope we all have very low pain days.

Hugs,
Barbara

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 3/22/2013 2:54 PM (GMT -6)   
Could you have a limited massage, like maybe legs, arms, neck? Seems like anything would help!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/22/2013 8:57 PM (GMT -6)   
I'm glad you're home now. Please try not to over do it with the cleaning. ;)
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 3/22/2013 10:43 PM (GMT -6)   
I'm going to call Pam tomorrow and see if she maybe would work on my shoulders and neck. It's my lower back area that's hurting me the most, but that's where my bone marrow biopsy was done so no massage there for a bit.

I'm trying not to over do it with cleaning.

Hope you all have a good weekend.

Hugs,
Barbara

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 3/23/2013 11:51 PM (GMT -6)   
Well I didn't manage to fall asleep last night until 3:45 am then I was up at 10:45 am. As I predicted my pain has been through the roof and I'm totally miserable cry cry cry

When I got out of bed I was so stiff and sore I was crying as I walked to the family room. I've been on all the muscle relaxers and none seem to work very well for me. I'm currently on 350 mgs of Soma 4 times a day. The type of Soma I have DOES NOT have any narcotics in it.

I started the day at a 7 out of 10 and now I'm sitting here at a 9 out 10. Ever since I was admitted with the jerk Dr, the pain management Dr's told me to take 12 mgs of dilaudid every 6 hours for BT pain. Within an hour of taking it, my pain drops down to a manageable 5 out of 10, however, once it's been 5 hours since I had my medication I'm struggling with serious pain again.

I really don't know what to do. I can't soak in a tub yet because of my biopsy site, so I had a really hot shower, doing stretching while under the hot hot water, and tried another cream hoping it will help me somewhat tonight. I'm just so sick of hurting if I could get someone to euthanize me I'd go for it. It's a shame that we can make that decision on any pet of ours but not for ourselves. Sorry not trying to stir up a debate, I know it's against the rules, just stating a fact on how I feel.

My massage therapist called today and I got her to agree to give me a massage on March 29, 2013. She has a bad cold and doesn't want to expose me to it. Plus she's still worried about my broken ribs, I DON"T care if it hurts them, my muscles are tight as rocks and burn like he!!. I've been stretching and putting on heat as ice only makes me tighter. I don't deserve to live with this kind of pain, IT'S NOT FAIR AT ALL.

I know my tolerance levels are so high and I really would like to go higher on my methadone, but my extended QT interval is worrisome and my Doctors are unwilling to raise it at this time. I'm hoping I'll start on acupuncture next week. I'm gonna go and try to do some meditation and try to relax a bit now.

I sure hope you are all feeling better than I am and I hope you have some pain relief and are able to enjoy whats left of the weekend. Take care and be safe out there.

Will update you tomorrow.

Hugs,
Barbara

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/24/2013 1:38 AM (GMT -6)   
Barbara, I'm so sorry you're in such pain.

Have you tried the David Fairweather video on youtube? He has a wonderful relaxation video. I used it the other day and felt so loose afterwards.

Take care, honey.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))
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