Well still no results on my bone marrow biopsy yet, did get an email from the Dr's office she wants me to have blood cultures drawn out of my port site on Monday. I'll stop by the Same Day Hospital and have that done at 12:30 and then I'll be meeting with the Pain and Palliative Care folks at NIH.
They are planning on starting me on acupuncture ASAP, and I'm going to attempt to learn medical hypnosis, I'm willing to try anything at this point to get some relief.
Today, I met with my PCM who is an Internal Med Doc. She had made the arrangements for me to be admitted at the military hospital for pain control. I told her I wanted to talk about
the jerk that took care of me while I was in the hospital. She replied to me, "I figured you'd want to talk about
him". LOL Apparently, he called her and had a conversation with her. Like I mentioned this jerk implied that I didn't require oxygen, and he had the intern walk with me around the ward w/o oxygen, to see if my O2 stats dropped. My hubby walked with us, and when we got back to my room, I'm purple and the intern comments that, "well we can't take away your oxygen, your O2 levels dropped to 83%, guess you need it."
WELL DUH I'm purple and struggling to breathe. How dare you make me walk w/o my oxygen.
Then this idiot Staff Dr tried to imply that I was depressed and that was why I needed to take pain medication, and that I needed to be admitted to a 12 step rehab facility right away. He kept going on about
how much my Dr cared about
me and how she asked him to look out for me. His parting shot as he left my room, in front of my hubby, was "SOMEBODY NEEDS TO BE THE BAD GUY HERE AND I'LL GLADLY BE IT."
So when I talked with my Dr today, she was really pissed off at him. She felt that he was questioning her ability to care for me and that he basically said she wasn't doing her job right. She was certain that I felt upset and that she was going to discuss things with him about
his questioning her comptence, but couldn't do anything on my behalf except to say he upset me. She told me to contact a patient advocate and file a formal complaint about
this jerk, I'm lucky that my hubby was a witness of his behavior towards me.
I had to go through two different evaluations by psychiatrist's to show that I did not need a 12 step program and that rehab wouldn't help me. That I have a terrible disease and it's very painful and I wouldn't manage w/o my daily pain medication.
I was worried that actually my Dr wanted me off them cause the jerk kept talking about
her. She reassured me though, that if she felt I had a problem, she'd stop prescribing the drugs for me. She felt really bad that I had such a bad experience with this jerk.
Anyway, that's the update on me. I'm hurting like crazy tonight. My back, hips, shoulders, and up the sides of my neck are burning like crazy. I'm in desperate need of a massage, but with three broken ribs my massage therapist won't touch me yet. I still can't soak in a hot bath because of the site where they took my bone marrow out isn't closed up yet.
Hope you all have a good Friday.
Post Edited (Barbara Lee) : 3/21/2013 10:11:41 PM (GMT-6)