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couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/16/2013 11:14 PM (GMT -6)   
Okay, I've been told that I have both Fibromyalgia and Lupus. I'm trying to figure out which is doing which to my body.
 
If I'm touched it hurts. nono
My left elbow is in a constant ache. If I put a support wrap on it- it stops.
My right knee feels weak and hurts at time.
My feet swell up.
My toes can't stand the covers or anything touching them.
My fingers will hurt at the joints when I'm typing.
My dominate hand makes popping sounds all the way up to my elbow when I make a tight fist.
Leg muscles from knee to thigh hurts to touch and walk.
I sound like rice krispies when I stretch. smhair
 
I'm very confused over what to complain about to my rheumy and what not to.
So far every gripe he's responded "Fibro".
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

bluejeans
Regular Member


Date Joined Dec 2012
Total Posts : 269
   Posted 3/17/2013 1:51 PM (GMT -6)   
I like you have a lot going on and its hard to know what causes what.
My lupus is effecting me right now as arthritis, which is joint pain and hips. Thats okay with me, better arthritis than attacking my kidneys, etc.
Sjorgrens is causing all the dryness whicj evoxac, restasis and lots of nose sprays help that, but it can also cause joint pain.
Fibromyalgia is mostly muscle pain according to my rheumy and I can identify that with my shoulders, and legs.
Spinal issues such as the scolosis, bulging disks, arthritis, DDD can also cause leg and foot pain.\

So I get confused to as to what causes what. I just explain everything to my rheumy and my pain Dr. and they can treat what needs to be treated. lol


\
Post lymphoma, Spleenectomy, Lupus, Sjorgrens, RA, Anti-phosphoid syndrome, Fibromyalgia, GERD, short bowel syndrome, scolisis, arthritis of spine, spondylosis, splondylesis, DDD,DJD

Faith in God, the love of my family and a good attitude keeps me going.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/17/2013 2:06 PM (GMT -6)   
Thanks, Bluejeans.

It's all very frustrating trying to figure this out.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2608
   Posted 3/19/2013 9:10 AM (GMT -6)   
Joy,

I understand your confusion! I have lupus, fibro, and osteoarthritis, all three which have some overlapping symptoms. I used to worry about what was what but finally decided to chill and unless I was having 'active' lupus symptoms such as fevers, and mouth & nose sores, and needed treatment, I concern myself more with how to make myself comfortable than worry with what's going on.

My lupus is quiet and the only med I take for it is plaquenil. I don't take anything for fibro except for pain meds. These days I suffer more with fibro and osteoarthritis than lupus.

Fibro is horrible and as more and more research is being done, doctors are beginning to accept that it's a real disease. Believe me, I know it's real, and so does my doctor. I can hardly get up in the morning. I feel like a steam roller ran over me in the night. Every part of my body hurts. It hurts to walk. I hate to be touched, can't tolerate massages, have fatigue that's indescribable, and have pain all over my body. I have real brain fog. I do understand what you're going through.

I've learned through the years that I'm much worse the day after I eat sugar. Diet matters. Exercise helps so I practice yoga and I walk. And warm baths are my friend. What helps me the most with any kind of pain is meditation. I often meditate while taking a hot bath.

I wouldn't look at discussing symptoms with your doctor as "complaining". Doctors hate complainers Be matter of fact with him run through the list of your symptoms. You already know all of this because you've give this advice to others here. Then have a discussion with him about concerns that something else might be going on. I hope you can get some answers from him. I know you've struggled with this for a long long time.

Good luck, Joy. And I hope you can figure out how to make yourself feel better.

Pat

Post Edited (PattyLatty) : 3/19/2013 8:15:29 AM (GMT-6)

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