I understand your confusion! I have lupus, fibro, and osteoarthritis, all three which have some overlapping symptoms. I used to worry about
what was what but finally decided to chill and unless I was having 'active' lupus symptoms such as fevers, and mouth & nose sores, and needed treatment, I concern myself more with how to make myself comfortable than worry with what's going on.
My lupus is quiet and the only med I take for it is plaquenil. I don't take anything for fibro except for pain meds. These days I suffer more with fibro and osteoarthritis than lupus.
Fibro is horrible and as more and more research is being done, doctors are beginning to accept that it's a real disease. Believe me, I know it's real, and so does my doctor. I can hardly get up in the morning. I feel like a steam roller ran over me in the night. Every part of my body hurts. It hurts to walk. I hate to be touched, can't tolerate massages, have fatigue that's indescribable, and have pain all over my body. I have real brain fog. I do understand what you're going through.
I've learned through the years that I'm much worse the day after I eat sugar. Diet matters. Exercise helps so I practice yoga and I walk. And warm baths are my friend. What helps me the most with any kind of pain is meditation. I often meditate while taking a hot bath.
I wouldn't look at discussing symptoms with your doctor as "complaining". Doctors hate complainers Be matter of fact with him run through the list of your symptoms. You already know all of this because you've give this advice to others here. Then have a discussion with him about
concerns that something else might be going on. I hope you can get some answers from him. I know you've struggled with this for a long long time.
Good luck, Joy. And I hope you can figure out how to make yourself feel better.
Post Edited (PattyLatty) : 3/19/2013 8:15:29 AM (GMT-6)