New to the Group: Have loads of questions!

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New Member

Date Joined Mar 2013
Total Posts : 6
   Posted 3/20/2013 6:56 AM (GMT -6)   
Thank you for the information you have shared on the post. Has anyone heard of Mixed Connective Tissue Disease? Besides weight gain and weight loss as potential side effects of plaquenil, what are others? Macular changes are why you need to check your eyes for changes. What other meds are usually prescribed? Any information you can impart are very, very helpful, as I am sure you had loads of questions at the onset of your diagnosis.
Thank you.

Forum Moderator

Date Joined May 2005
Total Posts : 7675
   Posted 3/20/2013 9:12 AM (GMT -6)   
Welcome, We love our MCTD (and UCTD) members just like we do everyone else!

If you read the first thread "Lupus Resources" you will find the answers to many of your questions.

After 10+ years, I still have had no side effects from Plaquenil. Other meds are often Prednisone, Cellcept, Imuran, MTX....if varies according to your personal variety of the disease.

Also look at, then pop on back with more pointed questions!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Regular Member

Date Joined Feb 2011
Total Posts : 399
   Posted 3/20/2013 7:12 PM (GMT -6)   
      I have been on Plaquenil for about 11 years and have no real side effects.  I do get my eyes checked every six months.  Before I was put on Prednisone, the Plaquenil did cause my white blood cell count to plummet.  The Prednisone helped to bring it back to normal.  Currently, I take 10 mg. of Prednisone every other day and 200 mg. of Plaquenil every day.  I have tried a variety of other meds, but all of them caused side effects or did not work.  Welcome to the group!!!  This is a great place to get your questions answered and get support.
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