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New Member

Date Joined Mar 2013
Total Posts : 2
   Posted 3/20/2013 9:12 PM (GMT -6)   
/: Eh, I'm new to this.
But, I'm 16 years old.
I was diagnosed with lupus just last year.
Well, I'm having weight problems, and depression. :/
well, I was 15 happy with my weight at 160
Then I lost weight in the hospital bumped me down to 156
Then got out, lost more weight got to 154.
But, then I started doing Chemo.
Which with Lupus (if you didn't know)
Comes with medication.
Sooooo, I was put on 60 mg of prednisone EVERYDAY
I gained over 40 pounds within 4 months /:
I got the moon face, and the stretch marks on my thighs, arms, breast, stomach.
Then she slowly lowered me, i'm at 10 mg a day now.
But,I still gained more, and more.
I now weigh 215 No I don't look like I weigh it, but just knowing I do depresses me SO much.
I workout every single morning, afternoon, and night.
And, I mean out of breathe red to the face workout.
But, I'm not losing any just gaining.
and, being 16 with a chubby face from having a thing face (to where to had self confidence in yourself) is.. really depressing.
I super duper need help and, tips on how to lose this "moon" face, and how to get on a proper "lupus diet"
Somebody, please help.
I need it :[

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 3/20/2013 10:42 PM (GMT -6)   
Have you discussed fluid retention with your doctor?

It's hard to lose weight even when you're not on predisone.
Before you do this make sure to discuss it with your doctors....
Instead of working yourself to death 3 times a day try doing a daily walk. Increase the distance slowly. Then move on to walk/jog. then jog/run, then run the whole way as you feel stronger. If you have a bike go bike riding or roller skating.
Cut out all sugar and high carb foods like cake, doughnuts, candy, chocolate, white bread, biscuits, etc. Eat fresh veggies, protein, fiber, and fruit. Try to stay down to 1200 caliores a day. Don't go less or you'll go into starvation mode and won't be able to lose any weight.
Watch out for starvation diets or you'll start having ketones in your kidneys and that's not good for you.

I wish you luck in your new lifestyle.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

New Member

Date Joined Mar 2013
Total Posts : 2
   Posted 3/20/2013 11:19 PM (GMT -6)   
Thank you so much :)
I've talked to my doctor about all of it.
With the water retention she said I should be "back to normal" by april but my face is still puffy /: I hate it.

And,with the diet she suggested to do a diet but, I didn't know what to do.
haha, but another question.

Is it possible to do something to help the water retention in my body go away faster?
Because, right now I'm getting checked to get another kidney biopsy.
because, I have high protein in my urine.
is that because of the salts, sugars, junk food.. ect?

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 3/21/2013 1:41 AM (GMT -6)   
No, the high protein is part of Lupus. I'm going through testing now because I have high protein too. Isn't Lupus fun? Not!!

If you stick with the diabetic diet (you can find it on line) it should help you with meal planning. Remember lean meats, low fat, lots of fresh veggies & fruit, and no junk food. Try to stay away from fried foods and salt also. No hamburgers and fries :(

How much water do you drink a day? My doctor perscribed lasix 2 times a day for my swelling but you have to discuss this with her. She might not want you on it if your kidneys are causing certain problems.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 3/21/2013 7:32 AM (GMT -6)   
Are you sure the high protein is part of lupus?

I think it's more that kidney issues are a part of lupus, and the high protein is part of what happens when the kidneys are acting up. One time high protein shows up when your ketones are up, which happens if you are eating no carbs at all with lots of protein. Don't cut protein, you need it for healing.

The weight gain from predinsione generally consists of two parts 1) the med itself causes some weight gain and some changes in metabolism. 2) the med increases your cravings for carbs & starches, esp. sugar and breads.

Try to stick to a reasonable amount of exercise, 3x daily may be excessive. Use websites to check out how many calories you are burning in exercise. Stick to clean prtein, vegs, and some but not huge amounts of fruit. You can still eat whole grains & should, but not excessive amounts. Like Joy said stay above 1200-1400 calories to avoid further damage to the metabolism.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 3/21/2013 11:50 PM (GMT -6)   
Hi and welcome to our group. I know how hard it is to deal with the moon face. I've had lupus for 25 years now and I've been on steroids daily for almost 12 years now.

I, like you, have a very very round moon face, stretch marks everywhere, a hump on my back, a patch of fat on the side of my neck, and very round and big in the middle of my body, but I've got these really skinny legs and feet and no butt at all. The family calls me chicken legs I'm currently having problems keeping my underwear and pants up shocked I stand up to walk and they start to fall down. My daughter finds it quite funny nono

Like Lynnwood and Joy said you need to avoid sugars and carbs. If you're a soda drinker you need to give that up, it's amazing how many calories are in a soda. They are the big cravings that people get when on steroids. I believe you said that you're still on steroids, you'll just have to give it time. Your moon face will go down eventually, I know that's that quick enough at 16. Try to exercise only once a day and IF your Dr approves it increase the amount of time you work out each day.

Good luck with your diet and we're here to answer any questions you may have.

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