New, looking for reading material

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cbk42
New Member


Date Joined Mar 2013
Total Posts : 1
   Posted 3/29/2013 9:27 AM (GMT -6)   
Hi everyone,

Last Friday I found out I have lupus, which I'm pretty upset about. I'm finally at a place where I am ready to start learning about the disease in more detail.

Are there any books, cookbooks, resources, etc that you would suggest for a newbie?

Other info:
I have 2 kids, one is 2, the other is 6.5 months old
I just started Plaquenil
I am nursing, though I am contemplating stopping because of the toll it sometimes plays
I work a very demanding job (clergy), working sometimes 60-80 hours a week

Right now my symtoms are exaustion (though neither of my kids are currently sleeping through the night so that's got to account for some of it), joint pain, swelling, and weakness, occasional headaches, hair loss, and stiffness.

Thanks so much!

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7720
   Posted 3/29/2013 10:36 AM (GMT -6)   
Check out www.lupus.org and "The Lupus Book:
A Guide for Patients and Their Families" by Dr Daniel J. Wallace.

Have you seen a rheumy? They are the folks who really know about Lupus & it's treatment. Have you been prescribed any medications?

The exhaustion is overwhelming, but it can be lifted with treatment.

All questions welcomed!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/29/2013 8:47 PM (GMT -6)   
Plaquenil will help with the fatigue and some pains.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 3/30/2013 11:45 PM (GMT -6)   
Welcome to the forum, sorry that you're sick though. I can understand your being upset with the DX. Sounds like you are very very busy with your kids and job.

Lynnwood, gave you some great suggestions to look for reading. As Joy mentioned plaquenil will help a lot with the fatigue and joint pain. It can take from 3 weeks to 6 months before you feel the full impact of the medication.

I've had lupus since I was 23 I'm now 48. I want to say that all lupus patients are different, some of us have mild cases and others are really ill with their lupus. I fall into the very ill category, but I've never given up and I keep fighting even when I don't feel like or think I can.

This is a great place to come and vent and be able to ask lots of questions. Please come and let us know how you are doing and ask away on your questions.

Good luck on the plaquenil, hope you feel better real soon.

Hugs,
Barbara
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