Hi, Barbara -
I've been meaning to write to you for some time to thank you for such a supportive response to my post. Thank you for taking the time to reply and for offering to let me contact you with questions. I am so grateful to have come accross this forum last year!
I have been absent from the forum for a spell as I recently returned to work -- after having been on medical leave for 6 months -- and the re-entry into the office place, deadlines, the train commute, short evenings, not enough sleep, etc. has been grueling.
In any case, I want to thank you for sharing your experience with costochondritis, pericarditis, and colchisine with me. I really appreciate it.
Last year I had the trifecta of chest pain: pericarditis, pluerisy, and costochondritis. Felt like I could barely breathe. Fun times.
I feel like I should be grateful that things have calmed down and the inflammation now seems to only reside in my breast bone and rib cage, but the pain prevents me from participating in activities I enjoy, and everyday activities trigger it, like tidying up my apartment, doing the laundry, going grocery shopping, carrying a purse, walking briskly, etc. It is sooo frustrating!
Stretching over a foam roller and using a heating bad often provides enough pain relief for me to sleep, but when I'm upright and active, it is always present.
I'm embarassed to tell you this, but sometimes I freak out and wonder things like, "Can costochondritis really hang on for over a year? Are we sure someone didn't miss a tumor pressing up against my rib cage? Are we sure I don't have infectious costochondritis from some virus or bacteria?" Of course, I am also too embarassed to ask my rheumy these quesitons!
I eat an anti-inflammatory diet, and I see an accupuncturist twice a month, but tihs doesn't seem to have made much of a difference the past year. I'm sure it all helps, it's just discouraging that no matter how much I try to take good care of myself, and deny myself physical activies that I would really enjoy, it's still there. All - the - time.
I don't have a lot of energy these days, but I've been meaning to look into something called cold laser therapy. Not sure how I would afford it, but I am desperate. I've also been wondering if it might be worthwhile to see an orthopedist.
Do you have any thoughts on all this? Your opion would be greatly appreciated. Barbara!
Diagnosed with SLE 2010; MCTD 2012
Medications: Plaquinel (300 mg); CellCept (1,500 mg); Colcrys (1.2 mg)