Met with my rheumotologist . In past two months I have seen him five times due to two back to back flares, bacterial bronchitis, several repeats of unbelievable fatigue, rashes, mouth ulcers..etc.. Have under gone solumedrol infusions, upped dosages of prednisone to 40mgs daily, solumedrol injections, and adding 15mg dose of Methotrexate with my already existent Plaquenil and Gabapentin.
He now wants me to start Benlysta infusions (had too sign consent form and waiting on auth from insurance co). He said first three would be two weeks apart then montly thereafter. He gave me brochures and pamphlets on the med. I have read some other site users experiences with it and the reading material is quite scary! I'm hesitate..but to be honest my doc has not steered me wrong yet. He feels the other meds alone for some reason are not holding lupus at bay. It seems everytime someone has some lil germ I get it. (This is extremely hard to avoid because I am a RN and work with Trach pts and those thr have c-diff coughs, etc. I am diligent with hand washing and use protective gear.
I would really like to know what we're the worst side affects, will I beable to work following infusion?
Did any one have copay?
Did anyone have to have solumedrol infusions/benedryl with Benlysta.
Thanks for any info anyone can provide me