Well I have had a really tough week. Monday, I went to NIH, apparently my initial bone marrow biopsy results, showed I had an infection in my bone marrow. So Dr A. wanted blood cultures taken from my medi port. To rule out any infection in my port.
So I did that at 12:30, met with Dr A and she said that it looks like my bone marrow is working REALLY REALLY WORKING HARD
to make red blood cells and my red blood cells are tear shaped. She really has NO idea as to why this is happening. She's also still waiting on a lot more results yet.
After seeing her, I went to my appointment in the pain and palletive care dept. I met with the PM Dr and she recommended that I need to come off my muscle relaxer Soma. She said that really a muscle relaxer does not relax the muscle, but it's the brain that it must relax so that the muscle can relax. She also stated that Soma is highly addictive and she felt it wasn't doing much for me.
She wants me to learn medical hypnosis and do a refresher courses on biofeedback. She told me that with all that I have going on I WILL NEVER BE PAIN FREE
. She said that I'm going to need to learn to draw on my inner strength that I have and focus on other modalities that will help get me through VERY tough times. I'm trying to look at this with an
not sure how well this will work, but I will try.
Then I met with their Chinese Dr that does accupuncture. Well he did a treatment on me, with electric stimulation attached to the back needles. The session lasted 30 minutes, and when I left the facility I felt fine. Around 7 pm I started to hurt in my lower back and on my butt cheek where he placed the needles. By 8 I was in so much pain, I had to go to bed and lay on the heating pad. I spent all of Tuesday and Wednesday flat out on my back in bed. I called the clinic and they had NEVER
heard of a reaction like mine. They suggested that he may have hit a trigger point, which released the muscle, which then caused inflammation, which in turn caused me pain. Not sure I buy that, but I'll try another session this coming Monday and see how I do.
I'm very fatigued and my hemoglobin is just barely above my cut off level that my hem/onc has set for me. I'm short of breath, am so tired, have chest pain and just feel awful
. I just wish my count would drop low enough and I can get my blood, I REALLY need a couple of units.
Lastly, I met with a Radiation Oncologist at the military hospital on Friday. My dermatologist who is renowned has decided that I can not have any more IV infusions, to treat my warts, and is recommending I get radiation therapy on my warts. Well the Dr I saw on Friday has agreed to perform the treatments. He did say though that he will start with my left thumb first just in case I have troubles and in the WORST CASE possibility that I end up with an
open wound that doesn't heal, and they have to amputate that thumb, it won't happen to both fingers at the same time. Once we know if it's gonna work he says we can do the radiation on ANY
of the warts I have. Hopefully, my body WILL NOT
grow them back.
So that's been my tough week, daughters been home from college for Spring break. We take her back to college tomorrow, which always makes me sad. I'm very worried about
our cat Grady. He's been with us since he was 5 weeks old, we got him from the pound in CA. My daughter, she was 3, and picked him out of the bottom cage. He fit in the palm of my hand, he weighed less than a pound. Well, Grady is now 17 and isn't eating to much, he's drinking, but I'm lucky if he's getting 1/4 cup of dry food in and maybe a tablespoon of wet food. Talked to the vet and she's recommended either boil skinless chicken for him or give him chicken baby food. She gave him something for nausea. I think our buddy is getting ready to leave us, he's down to 10lbs. He's a big cat and at his all time high he weighed 18lbs. Please pray and send positive energy that he doesn't suffer, I'll try NOT to let that happen, and that I can handle the loss of my baby. Since my Dad's passing in May 2011, Grady has become my comforter, I know I'm gonna lose it, when he passes.
Happy Easter and I love all of you here at HW.
Post Edited (Barbara Lee) : 3/31/2013 12:10:08 AM (GMT-6)