Nineteen with Undifferentiated Connective Tissue Disorder

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Kathy Jo
New Member


Date Joined Apr 2013
Total Posts : 2
   Posted 4/4/2013 12:26 PM (GMT -6)   
I am the mother of a nineteen year old daughter that has been struggling for three years with UCTD. She also has a scattered history of ITP. She is currently taking Plaquenil, Cymbalta, Robaxon, and Ambien. All of this and she is trying to go to college. I would love to hear of some possible alternatives to some of these meds. We are just looking for a better quality of life. confused

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/4/2013 3:27 PM (GMT -6)   
Has the doctor discussed some of the other meds available?
I'm not sure which of these are okay for UCTD but I know they are used for Lupus: MTX, Cellcept, Imuran.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 4/4/2013 8:52 PM (GMT -6)   
The main  thing is to get the immune system under control.  Of all the meds you listed the only one that does that is plaquinel and that is a very mild treatment.  If your daughters symptoms are more severe or progressing then strong meds are needed.  Prednisone is usually the first one tried because it often works and works quickly.  Another med that is tolerated for long term use is often introduced and prednisone tapered if possible.  There are many different drugs, or combinations of drugs to treat lupus. 
 
Get a second opinion if the doctor is not being aggressive.  It would be a good idea anyway.  Where do you live?  There are lupus support groups in many cities around the country and it is good to talk to others who have already fought the lupus war.  It is not a hopeless fight.
 
Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

Kathy Jo
New Member


Date Joined Apr 2013
Total Posts : 2
   Posted 4/8/2013 9:47 AM (GMT -6)   
We live in East Alabama. My daughter hates prednisone. She had bouts with ITP growing up and had to take it. The mood swings and weight gain at a young age has caused her not to ever want to take it again. Couchtater, I have not heard of any of these meds. I will do some research and ask her doctor about them. Thank you
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