People are affected to a different extent -- it all depends on your personal manifestation of Lupus. I couldn't live without light - grew up outdoors in south Florida. Now in Georgia with the hot summers...I can go outside mornings and after 5:30 pm without too much of a physical reaction.
Now that means I'm doing something outside in shorts & t-shirt, and keeping well cooled with shade & water. I can't do midday when sun is raw and heat is too much -- then I immediately break out into a red sun rash, and if I let that go it'll turn into a nasty lupus flare which I totally avoid if at all possible!!!
I won't generally spend more than 1.5 - 2 hrs a day outside, then skip a couple days before I do it again. Not sitting by a pool, not boating -- reflection off the water burns me fast!
My house windows -- well, the drapes are usually
open to let the light in, but I'm not sitting in the sun. I do avoid putting florescent lights in the house. And I have the darkest legal coverings on my car windows.
My eyes are actually much more light sensitive than my skin -- I'm only without sunglasses on *very* overcast days. Otherwise I'm squinting big-time...if I can get my eyes to
open at all.
So that's how it works for me...although cautious, I haven't yet gone the route of the expensive 50+ rated clothing, etc. My fear with that stuff is that it will block the sunlight, but also increase the heat -- and heat is as much or more so a Lupus enemy!
Everyone's experience varies, you just have to try slow exposure and see what your body is comfortable with. You may get a rash, or simply find you fatigue increasing, or something else altogether! Fun, fun, fun!
Lynnwood, Lupus & Sjogren's ModeratorDIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde