5 year old with positive ANA of 1:160

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Megan Eliz
Regular Member


Date Joined Apr 2013
Total Posts : 65
   Posted 4/18/2013 4:59 PM (GMT -6)   
My 5 year old DD was diagnosed with viral arthritis 2 years ago when she had pains in her hips, knees and legs. She was limping badly at one point. Her ANA was 1:40 which the lab called positive but the rheumatologist said not to worry about it and said she most likely had viral arthritis. She got better.

Two weeks ago she started complaining about a pain in her leg. It only lasted a minute then she was fine, this went on for a few days. it would come and go but I was worried so I took her to the doc. They ran her blood and her ANA is now 1:160. All her other blood counts are fine except her red blood cells and hemoglobin are just below the cut off for low. 
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Her anti-DNA double stranded test came out with an index of 1.06.  The lab reference had this as abnormal but equivocal.  The negative range was <= .90.  0.91-1.09 was equivocal  >=1.10 was positive.
I am just confused by this. Do healthy people have this anti dna in their blood or since they found a level I should be very concerned.
We are going to the rheumatologist next week but thought I would ask here since I was worried.
 

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 4/18/2013 6:49 PM (GMT -6)   
Lupus and other autoimmune diseases are not diagnosed solely by blood tests. What you have now is data pointing you to an area to investigate -- doesn't mean yet that an AI disease is involved, and if an AI disease does turn out to be occurring, that doesn't predict the course of the illness. They will check other blood factors (such as inflammation markers), and ask about a multitude of symptoms.

These diseases present differently in each individual, some may have mild involvement, some more severe, while some have symptoms that come & go for long or short periods of time. They just aren't predictable, so don't let yourself get too caught up in worry, you may need that energy for something else later!

Right now it's best to keep calm, not do too much online investigating, and let your rheumy do his/her job. There are several methods of treatment these days. I know I had random pains like that in my legs from about age 8-13, and they never did locate a precise cause.

Best wishes, and keep us posted!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Megan Eliz
Regular Member


Date Joined Apr 2013
Total Posts : 65
   Posted 4/19/2013 4:09 PM (GMT -6)   
Does anyone else have experience with an equivocal results on an anti DS antibody test?

Just looking for other stories

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/19/2013 4:14 PM (GMT -6)   
I didn't have a positive score on my anti DS antibody test.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Megan Eliz
Regular Member


Date Joined Apr 2013
Total Posts : 65
   Posted 4/19/2013 4:39 PM (GMT -6)   
thanks. I guess the fact that her test is not positive or negative and her apt is not till next week is getting me crazy.

StephanieRogers
New Member


Date Joined Apr 2013
Total Posts : 1
   Posted 4/19/2013 6:59 PM (GMT -6)   
what kind of umbrella is best for lupus. and who sales them.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/19/2013 10:51 PM (GMT -6)   
Go to coolibar.com for sun protective clothing in kids sizes and umbrellas.

You can buy her play clothes there and fun kids' hats she'll love. Their clothes are very soft and comfortable even in hot weather.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))
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