Barbara I know you have really ran the mill being in and out of hospitals, trying all different roads to get relief...my prayers go out to you.
From the census I have gotten Benlysta is not all its cracked up to be and the majority don't have lasting results in a positive way, so the choice is trying to find the right oral meds to keep me on track.
Just truly wish I could get some relief!
Oreo- other than WBC did you suffer any other effects from Cellcept? My dr wrote me out on disability for month (initially he was gonna do three but I said one and will see how I felt, unfortunately nothing has changed andi was hoping to beable to try something else quick while I was still home.
Thank you ladies for all the support and advice . Wish I could wave a magic wand to make us all feel well again
Dx with Lupus Feb 2012, Antiphospholipid Syndrome, Lupus Anticoagulant , Fibromyalgia , DDD