May be in a FLARE?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Dec 2012
Total Posts : 269
   Posted 4/22/2013 7:46 PM (GMT -6)   
For the last week I have felt terrible but have told myself I'm fine and kept moving.  (anyone eles do that)  My feet, toes, fingers, hands and wrists hurt like crazy.  I can't pick the coffee pot up in the mornings.  My knees ache at times and my lower back and hips.  I only sleep in the bed a few hours because my hips wake me up hurting so bad I have to get up and get in the recliner.
My left ear has been stopped up for a month.  No infection.  I have seen the ENT twice.  He put me on singular two weeks ago to see if that would help.  Not.....still stopped up, driving me nuts.
I am tired all over and make myself do everything I do.  This is the time of year I enjoy being outside and working in my plants.  I don't have fever, just feel lousy.
What part of my body is causing what?  I am scheduled for a steroid injection in my back the second week of May and I am down to 7mg on my steroids(have been tapering down mg a month).  I so don't wont to go back up on them.
I had the Rituxan infusion in Jan an felt so good after it and that has helped me to lower the steroids.  I can't have another one til 4 to 6 months.  I take nuerontin, plaquenil, asa, potassium, ms contin, ultram, baclofen, and predisone.
Any ideas? 
Post lymphoma, Spleenectomy, Lupus, Sjorgrens, RA, Anti-phosphoid syndrome, Fibromyalgia, GERD, short bowel syndrome, scolisis, arthritis of spine, spondylosis, splondylesis, DDD,DJD

Faith in God, the love of my family and a good attitude keeps me going.

Regular Member

Date Joined Feb 2011
Total Posts : 399
   Posted 4/22/2013 9:28 PM (GMT -6)   
Hi Blue Jeans,
     Sometimes when I have reduced the Prednisone, I have experienced pains like you describe and a general feeling of malaise.  It usually went away when I upped the steroid or proceeded more slowly.  I would always calls my Rheumy and she would instruct me as to how to proceed.  I would suggest calling your doctor.  It's very unpleasant to feel that way.

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 4/22/2013 11:58 PM (GMT -6)   
Sounds like a flare up to me. I'd call the rheumy and see what can be done.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 26, 2018 6:30 AM (GMT -6)
There are a total of 3,006,722 posts in 329,385 threads.
View Active Threads

Who's Online
This forum has 161848 registered members. Please welcome our newest member, Winnme1.
185 Guest(s), 5 Registered Member(s) are currently online.  Details
physedgirl09, getting by, cilly, Redwing57, sickofbeingsick00