For the last week I have felt terrible but have told myself I'm fine and kept moving. (anyone eles do that) My feet, toes, fingers, hands and wrists hurt like crazy. I can't pick the coffee pot up in the mornings. My knees ache at times and my lower back and hips. I only sleep in the bed a few hours because my hips wake me up hurting so bad I have to get up and get in the recliner.
My left ear has been stopped up for a month. No infection. I have seen the ENT twice. He put me on singular two weeks ago to see if that would help. Not.....still stopped up, driving me nuts.
I am tired all over and make myself do everything I do. This is the time of year I enjoy being outside and working in my plants. I don't have fever, just feel lousy.
What part of my body is causing what? I am scheduled for a steroid injection in my back the second week of May and I am down to 7mg on my steroids(have been tapering down mg a month). I so don't wont to go back up on them.
I had the Rituxan infusion in Jan an felt so good after it and that has helped me to lower the steroids. I can't have another one til 4 to 6 months. I take nuerontin, plaquenil, asa, potassium, ms contin, ultram, baclofen, and predisone.
Post lymphoma, Spleenectomy, Lupus, Sjorgrens, RA, Anti-phosphoid syndrome, Fibromyalgia, GERD, short bowel syndrome, scolisis, arthritis of spine, spondylosis, splondylesis, DDD,DJD
Faith in God, the love of my family and a good attitude keeps me going.