Ra and lupus shares a lot of the same meds. I have taken plaquenil for 7 years with no problems. I have my eyes checked every 6 months, and my Dr. says he has never had a case of damage to the eyes from plaquenil.
We must all do what is the best treatment for us. I take the plaquenil and am down to 7 mg of steroids a day, nuerontin, asa, potassium, calcium, multiple vitamins. I take a saliva pill for my sjorgrens and well as restasis for my eyes and nose sprays . I take a muscle relaxer when needed as well as pain meds. (low dose). I became worse around thanksgiving and was given 2 infusions of Rituxan in January. It definitely helped and I am probably getting close to needing it again.
I exercise, use heat and ice as needed, hot tub, and try to pace myself.
I have trouble most nights sleeping. Trazadone was wonderful for that. Due to the dryness it caused I had to come off of it and use Lunesta. I tried doing without the lunesta, but decided I could not deal with multiple illnesses without sleep. Even now I sleep 2 hours at the time, wake and eventually go back to sleep. Most nights I am in pain.
I guess what I am trying to say is Lupus is very hard to diagnois. It can flare on you at the drop of a hat. Each of us have to find what works for us and there is no shame is taking meds.
I hope you find what works for you.
Post lymphoma, Spleenectomy, Lupus, Sjorgrens, RA, Anti-phosphoid syndrome, Fibromyalgia, GERD, short bowel syndrome, scolisis, arthritis of spine, spondylosis, splondylesis, DDD,DJD
Faith in God, the love of my family and a good attitude keeps me going.