Worried and frustrated

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lisasue525
New Member


Date Joined May 2013
Total Posts : 2
   Posted 5/1/2013 10:09 AM (GMT -6)   
Hello,
I have had minor left side weakness for 12 years after a bout with encephalitis. Within the past 2 months I have had symptoms that mimic MS. Brain MRI is clear. I have a weird sensation in my left leg. Very uncomfotable almost painful. My left arm feels heavy. I have some cognitive issues and I stumble a little. I had labs and they showed positive ANA with sjogren and scleraderma reactive. However, I do not have the dryness that comes with sjogren or skin issues that go with scleraderma. My neurologist mentioned something in the lupus family, restless leg or some other autoimmune disorder. If my MRI was clear how can I have lupus? Anyone know anything about lupoid sclerosis? She ordered an MRI of the c spine and an EEG. I haven't seen rheumatologist yet. That appt is Tuesday.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 5/1/2013 11:59 AM (GMT -6)   
lisasue525 said...
I do not have the dryness that comes with sjogren or skin issues that go with scleraderma. If my MRI was clear how can I have lupus? Anyone know anything about lupoid sclerosis?


Sjogren's can present with dry internal tissues that you may not notice as easily as someone presenting with dry eyes or dry mouth.

A clear MRI generally means you don't seem to have MS -- it has no precise meaning, either positive or negative, with regard to Lupus. If it isn't clear, they generally look closer at MS tests; if it's clear, they generally look closer at auto-immune tests/symptoms.

The term Lupoid Sclerosis means an overlap of Lupus and MS...it isn't really a separate disease on it's own. Since these diseases have overlapping symptoms, sometimes it takes years to decide which to diagnose. Meanwhile, focus on symptom management.

Lupus can produce muscle weakness, and it and other auto-immune diseases can contribute to the cognitive issues you are reporting.

It sounds as though you have some questions for the rheumy! They are the experts in identifying and treating auto-immune illnesses, so you are headed in the right direction.

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

lisasue525
New Member


Date Joined May 2013
Total Posts : 2
   Posted 5/1/2013 1:18 PM (GMT -6)   
Thank you for that information. I appreciate it!

Frejya
Regular Member


Date Joined Sep 2012
Total Posts : 21
   Posted 5/2/2013 2:57 AM (GMT -6)   
Hey, that appears to be a serious condition which must be addressed as soon as possible. I am no medical practitioner but I would suggest you to visit an experienced doc at the earliest.
Chiropractic Orange
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