New here, undiagnosed

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Tia S.
New Member


Date Joined May 2013
Total Posts : 8
   Posted 5/5/2013 10:32 PM (GMT -6)   
Hi I'm Tia. 25 years old. I've had back and spine pain on my right side only for 4 years. I have had xrays and MRIs that confirm disc bulging. I have had PT, as well as almost 15 facet, cervical and thoracic injections. However my blood work came back positive for ANA levels recently twice. The first time was 1:160 with a speckled pattern and the second time 1:360 with a centromere pattern. The doctor suspected an auto immune disease. I was then sent to a rheumatologist who was rude and uncaring. I am currently waiting for an appointment with a different one. Sadly they cannot see me until July 23rd. I was hoping to post some of my symptoms here and ask anyone if they have had any of the same. So here we go:

Back pain, Right side only: Starts at the top of the neck and continues to the base of spine and extends outward. 4 years and has only gotten worse.
Right leg numbness when laying on stomach or back
Right arm/hand numbness, tingling and shaking randomly throughout day.
Fatigue
Headaches, usually on the right side of head, eyes and neck. 1-3 times weekly.
Sciatic nerve pain, right side only
Severe Constipation since childhood
Severe muscle inflammation of entire right side of spine and back.
Red inflamed, flaky patch on right side of nose. Suspect psoriasis, has been persistent for 2 years or so.
Loss of range of motion in neck when tilting to the left
Loss of the ability to sit, stand or walk without assistance or rest within 10-30min

Things I am diagnosed with
Degenerative Disc Disease of entire spine
Five bulged discs (Possibly more)
Scoliosis- Slight curve
Leg length discrepancy 4mm
Anxiety/Depression
Vitamin D Deficiency

If anyone has any ideas or anything at this point I would be so grateful. I hope to find support hear and hope everyone is as well as you can be.

Post Edited (Tia S.) : 5/5/2013 9:45:07 PM (GMT-6)


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/5/2013 11:00 PM (GMT -6)   
Welcome, to Lupus forum.
I met you over in Fibro forum.

Have you looked at lupus.org or lupus.com, yet?
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Tia S.
New Member


Date Joined May 2013
Total Posts : 8
   Posted 5/5/2013 11:13 PM (GMT -6)   
Hello,
Yes I am now. I've been also looking up information on the central nervous system lupus you mentioned with no results. Thank you for the links, they are helpful so far.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/6/2013 1:17 AM (GMT -6)   
You can find it on the lupus.org site. There's a section on nervous system on the side bar to click on.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Tia S.
New Member


Date Joined May 2013
Total Posts : 8
   Posted 5/7/2013 7:51 PM (GMT -6)   
I found it thank you. Tons of good information on there. Like I said in the other threads I am talking to my doctor this week and I will bring this ideas to him. Thanks again.
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