Well I spoke with my Rheumy and we went over a few things. He's aware that my ankles are swollen and causing a lot of pain. I told him walking just 20 feet is difficult. Ever since decreasing my prednisone my RA/Lupus has started flaring big, big, big time.
He said that my oncologist brought my bone marrow biopsy results to him and they discussed the results. My oncologist spoke with the oncologists at NIH, and they all agreed that I have Large Granular Lymphocytic Leukemia. This type of leukemia can be seen in patients with RA/auto immune diseases. So they are not surprised to see that I have this.
I will have to do repeat bone marrow biopsy's every 6 months to watch how fast it's progressing. Since I'm unique and special (NOT) I never do anything textbook, so they are expecting my leukemia to advance and change faster than the usual patient with this type of leukemia.
I will meet with my oncologist next Wednesday and I will get the game plan for my treatment. This Friday will be my last radiation treatment on my thumb. So far it's not done anything yet, but I guess we wait and watch now.
Well, other than feeling like a total piece of do do, that's all new here. Daughter will be done with her sophomore year of college next Saturday the 18th. I wish she were staying home with me thru the summer, but she has a job in NYC. At least, she doesn't have to be there until the 9th of June.
Hope you are all doing well and are having low pain days. Sorry I've not posted this week or so, I'm just soooooooo wiped out. I'm guessing it's the combo of the flare and radiation. Take care and be well.