low grade temps.....

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lucysgd
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Date Joined Jun 2008
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   Posted 5/10/2013 1:47 PM (GMT -6)   
I am wondering about the low grade temp thing associated with Lupus. Most days I run a low grade temp that starts building in the early afternoon, peaks around 8-10PM and then slowly returns to normal (usually back into the 98's by midnight, but not always).

In the morning when I get out of bed, it's in the low to mid 97's. It generally rises to around 99.5 or so - higher if I've had a very active or trying day. Sometimes I feel puny, when it comes on - but other times not. I get close to 100 after taking a shower and doing the whole hair thing, whatever time of day that is - which sometimes feel like quite a workout. So maybe it's poor conditioning? Circadian rhythm issue?

I have a very hard time getting to sleep by a decent hour at night - and read something about body temp needing to cool down as a precursor to feeling sleepy/sleep. I do have some days that my temp stays within the normal range (whatever that really is )

Thoughts?

















Lynnwood
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Date Joined May 2005
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   Posted 5/10/2013 2:56 PM (GMT -6)   
For several years my temp rose about 4:30 every afternoon - so I don't think the variations your experiencing are very unusual. I normally run "low" - think 96.8 - and it would rise to about 99. Since it never got over 100 my Drs never really counted it for anything & didn't treat specifically for that.

Even before Lupus I've had horrid insomnia, so as a matter of course I set the bedroom temperature 62-64 every evening about an hour before bedtime. It seems to help quite a bit - as does a cold drink and a splash of cold water on my face.

Be well!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
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Date Joined Jul 2009
Total Posts : 14475
   Posted 5/10/2013 4:18 PM (GMT -6)   
The normal temp for me is 96.1. I used to think I was buying defective themometers.
My body temperture will rise up to 99 when I'm at my worse.
The problem with my body rhythm is I am awake until 5am most days then sleep until 2 or 3pm. I've tried to go to sleep earlier but my body just won't do it.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

oreo11
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Date Joined Feb 2011
Total Posts : 399
   Posted 5/10/2013 5:02 PM (GMT -6)   
 
My normal body temp is around 96.1 as well.  When it rises to 98.6, I feel it.  It has been really difficult to convince docs that 98.6 is a fever for me.  When it hits 99, I feel miserable.  I find that if it comes back down, I have an easier time with sleep.  I get pretty restless when a fever is on.
 
Laura

lucysgd
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Date Joined Jun 2008
Total Posts : 675
   Posted 5/10/2013 9:29 PM (GMT -6)   
Sounds like a typical fluctuation, then. Lynne you said "for several years" your temp ran up in the afternoon....has it settled down? This has been going on with me for a couple years off and on - but I don't think longer. Wondered if inflammation had a role, since it does make me feel crummy sometimes. Rheumy doesn't seem concerned, though.
Good idea about lowering the temp before bed. I always keep the bedroom cool - but, it's that before bed period that counts, I guess.

Thanks for the responses everyone - good to know I'm not the only one with night-owl problems. Must be a a connection with the body temp. I read something recently about elevated TNF factor playing a role with sleep problems and autoimmune conditions like lupus as well.

Lucy

Lynnwood
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Date Joined May 2005
Total Posts : 7720
   Posted 5/11/2013 6:45 AM (GMT -6)   
My lupus was more active 2002 - 2011, it has gotten "quiet" in the last 2 years. Temp will still spike if I do too much, but usually doesn't nearly as often as it did then.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

TXplowgirl
Regular Member


Date Joined May 2010
Total Posts : 66
   Posted 5/11/2013 6:01 PM (GMT -6)   
And here is the typical saying.
 
Wow, and here I thought I was the only 1. tongue
 
But yes, since the day I was dx'd with Lupus my dr suggest I keep track, and my normal is around 96.8, when I start reaching 98 i am burning up. And yes, I have to have it very cool in my bedroom to be able to sleep.

bluejeans
Regular Member


Date Joined Dec 2012
Total Posts : 269
   Posted 5/12/2013 12:35 PM (GMT -6)   
Normal for me is also 96.1 and when it reaches 98.6--99 I feel it to and usually there is inflamation going on.
I had a bacterial infection 2 years ago and spent 9 days in the hospital. My temp was 104, so I knew with no spleen it was time to go to the hospital.
I now know not to worry about the low grade to much, if something is really wrong it will go up.
Post lymphoma, Spleenectomy, Lupus, Sjorgrens, RA, Anti-phosphoid syndrome, Fibromyalgia, GERD, short bowel syndrome, scolisis, arthritis of spine, spondylosis, splondylesis, DDD,DJD

Faith in God, the love of my family and a good attitude keeps me going.

Mrsrt10
New Member


Date Joined Sep 2012
Total Posts : 17
   Posted 5/17/2013 12:24 PM (GMT -6)   
Wow..how interesting. My normal temp is also around 96.8 to 97.4 and I feel horrible when it's at 98.6 or so...
I also thought I was buying defective therometers...
I find this very enlightening.
Currently prescribed Imuran 200mg daily and Plaquenil 400 mg daily.

Teddtlove
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Date Joined Jan 2013
Total Posts : 1037
   Posted 5/27/2013 5:33 PM (GMT -6)   
Wow my normal temp is in the 96 to 97 range as well. This is strange
30 female. Sherrie, 2007 diagnosed with UC, also have Hypothyroidism, Intercostal Neuralgia, Agoraphobia, Bipolar tendencies, Panic disorder, Acid reflux, Lactose intolerance, Eczema, Migraines, Degenerative disk, Hypertension, and Anemia.
Lialda, Canasa, Hyoscyamine sulfa, digestive ad lactose defense, Cymbalta, lyrica, Lomotil , klor-con20, VSL 3DS, Rainbow light, Vit D, started Humira 12/31

Tgo
New Member


Date Joined Dec 2013
Total Posts : 9
   Posted 12/16/2013 9:07 PM (GMT -6)   
My temp also runs low, about 96.8 on the regular. I try to tell doctors that I feel feverish at 98.6 and higher but they just brush it off. Who made up the hard rule that every single person should have a temp of 98.6? I'd like to meet this person!

Teddtlove
Veteran Member


Date Joined Jan 2013
Total Posts : 1037
   Posted 12/16/2013 11:34 PM (GMT -6)   
Well it was established by testing only Caucasian men and averaging that over time. At least that is what I was told in a college course when they were explains that racism and sexism even go into things we never think about like average body temp.
30 female. Sherrie, 2007 UC, 5/13 UCTD, 10/13 Fibro, Hypothyroidism, Intercostal Neuralgia, Dysautonomia, Meralgia Paresthetica, Agoraphobia, Bipolar tendencies, Panic disorder, Acid reflux, Lactose intolerance, Eczema, Migraines, Degenerative disk, and Anemia.
Plaquenil, Lialda, Canasa, digestive ad lactose, Wellbutrin, Cymbalta, Lyrica, Midodrine, VSL 3DS, Rainbow light, Vit D, Humira 12/12
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