Just diagnosed

After 10 years of orthos, neuros and rhuemys, I finally went to a gold standard clinic and was diagnosed with antiphospholipid antibodies and mild systemic lupus. Finally a diagnosis! I'm relieved and now (for some reason) even more symptomatic. The scripts were baby aspirin and plaquenil and my pain has significantly reduced in two weeks. But my fatigue, headaches, and temperatures vary 4-8 times a day.

I used to be a fully functioning adult (I'm 54). I can't imagine working at a job like this. Can one qualify for disability with mild lupus?

I have frequently found that when the pain is at it's worst, other symptoms can be milder (fatigue, headache, etc.) and vice versa - as in the fatigue is practically disabling, but the pain, swelling, is milder. It's a confounding condition for sure. I know it's a full on flare when everything is acting up at once. My temperature fluctuates regularly also - especially in the late afternoon into evening, flare or no flare.

As for disability, you may be in a flare right now that is making your job seem less do-able. I'd give the Plaquenil time to take full effect. That takes anywhere from 3-6 mos. or even longer. For me, the biggest benefit was in the fatigue department, but also general pain. That said - if you really don't feel any better after 3 mos., I'd consult with your doctor (or sooner if things get worse).

Sorry you've struggled for so long without a diagnosis - but hopefully things will get better very soon!!

Lucy