Hospitalization

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oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 5/26/2013 8:28 PM (GMT -6)   
 
Hi Everyone,
 
     Last Thursday evening I went into Atrial Fibrillation (second time since 22 months ago).  The ER doc also found that I had a rapid ventricular rate, which was different than the last time.  I ended up being admitted to the Primary Care Unit from the ER (six hours later cry ).  They gave me an incredibly strong medication IV when the Cardizem was not working.  This enabled me to cardio-vert in 26 hours, instead of the almost three days it took last time.  They found me to be low in potassium, calcium and TSH.  Best guess is that this is Lupus-related or a result of long-term steroid use.  By the second day of hospitalization, I had the typical Lupus mask and was miserable.  Solu-Cortef was given and that seemed to help decrease my inflammatory response.  I came home late this afternoon, tired and achy...but thrilled to be back to my own things.  My only concern is that I have two huge spots of phlebitis, one on each arm, that are a result of IV infiltration.  They are still hard, puffy, red and painful to the touch.  Is there anything I can do besides wet warm compresses and ice?  I will also be taking some time away from work next week.  The Hospital Doc put me on a Beta-Blocker for the heart, which might make me a little dizzy and tired.  Anybody out there have any experience with Beta-Blockers??  This is all new to me.
 
Thanks for listening!
Laura

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/26/2013 9:37 PM (GMT -6)   
I've never had Beta-Blockers before but I've had the phlebitis from IV before.

I used ice compresses mostly to ease the pain and inflamation. I did do a few warm compresses. It just took time for it to get better, sorry.

Sorry you had to endure the hospital so soon after just getting out. They got you fixed up quickly though.

Feel better (((((((((((((((((((((gentle hug))))))))))))
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 5/27/2013 11:51 AM (GMT -6)   
Thanks Joy,
 
     The hug feels great!  The phlebitis is better today.  I have been alternating wet compresses with ice and that does seem to be working.  The Beta-Blocker is making me feel tired and a little dizzy, which I was told it would.  I am planning on calling my primary tomorrow to set up an appointment and see where we go from here.
 
Laura

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 5/28/2013 1:52 AM (GMT -6)   
Laura,

I hated to read that you were back in the hospital so soon. Sounds like you went through quite an ordeal. I hope they can get your issues with your heart straightened out really soon.

As for Beta Blockers I've taken several different ones over the years. My hubby also takes Beta Blockers. Yes, they are known for making you tired. They can cause serious issues with fatigue and weight gain, I'm sorry to say.

I know that both hubby and I really had A LOT of fatigue on them. It really doesn't help us out when they give us something that makes us more tired.

I know for me and hubby we were so tired that we just became more and more sedentary, which then made us gain weight, it's a HUGE roller coaster ride you can't get off of. Hopefully, they can maybe find something different for you.

I'm glad to hear that the phlebitis is a bit better today. I hope that the dizziness lessens as you gets used to the Beta Blocker. I hope your appointment went well and you were able to come up with a good game plan.

Take care and when you can please update us. (((((hugs))))$ I hope you get to feeling better real soon.

Hugs,
Barbara

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 5/28/2013 8:35 PM (GMT -6)   
 
Hi Barbara,
     I am feeling much better today.  I also seem to be tolerating the beta-blacker a little bit more.  No more dizziness.  In fact, I took a short walk with my husband this afternoon and only noticed some breathlessness on the uphill.  I plan on working a half day tomorrow.  If I don't the work promises to pile up on me, and that would be a stressor I do need right now turn .  The end of the school year is always a challenge.  I did get an appointment with my PCP on Friday, which I am grateful for.  Hopefully, she can give me the skinny on this drug and we can brainstorm some alternatives.  This was my second bout of Atrial Fibrillation in less than two years, so I am concerned.  But I also do not want to be taking too many drugs!!!!  Thanks for your thoughts and hugs, Barbara.
 
Laura

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 5/30/2013 7:04 AM (GMT -6)   
Laura,

Just wanted to check and see how you are doing on the beta blocker. I was happy to hear that you weren't feeling as dizzy as the day before.

How is the fatigue doing? Are you flaring in addition to the heart issues you seem to be having issues with?

I really hope that you can tolerate the medication. Hopefully, your Dr will have something to offer you, when you see them.

Take care and try to get as much rest as you need. Please keep us updated on how you are doing.

Hugs,
Barbara

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 5/30/2013 8:20 PM (GMT -6)   
 
Crazy me.  I went to work and came home feeling beat up and exhausted.  I forget that when I am on edge physically and emotionally that it is difficult to deal with teens at the end of a school year.  So naturally, I got swept up in adrenaline to get through the day and when I got home, I tanked.  I was mostly flaring in the hospital, but the symptoms have subsided.   Ah, the wonders of Prednisone :-) . The new medication is taking some time to get used to.  My resting pulse is 50 (usually it's 60-64) and with activity, it hasn't gone higher than 78!!!  So I get winded and short of breath.  A real burden for someone who is used to having a little more oomph with physical activity.  I see the PCP tomorrow, so hopefully we can dosage, etc.....and determine if I should go back to the Cardiologist.   I plan on curling up on the couch this evening and finishing the book I have been reading.
 
Hugs Back!
Laura

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 6/1/2013 11:12 AM (GMT -6)   
Hi Laura. I'm sorry that I'm just now reading your post. You've had such a rough time! I like my cardiologist and I'm sure once all the tests are run and he gives me the usual "it's lupus" I'll keep him in mind as a resource. I hope your cardiologist has done a complete workup on you. I'm sure you know how serious A Fib can be, plus both extremely low potassium and/or calcium can cause heart failure (that's the lab in me talking). Eat plenty of bananas (K) and dairy (Ca) along with your meds.
 
I'm so glad school is almost out for you. My cardiologist wants me to take it easy until we find why I'm SOB, but hearing you walk makes me want to walk too. Perhaps, like you, I'll go with hubby so he can keep an eye on me.
 
I just bought a bathtub caddy that has a reading rack. Ah the wonders of lavender Epsom salts and a warm bath! Do what ever eases your mind and you find relaxing. Love, Donna

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 6/1/2013 6:21 PM (GMT -6)   
 
Hi Donna,
 
     Thank-you for the thoughts and suggestions.  My PCP did refer me to a Cardiologist who specializes in Arrhythmias.  The last one I saw seemed good, but not too interested in dealing with my issues.  I got the feeling "I wasn't sick enough."  I know how dangerous this condition can be.  My labs are back to normal and the medication I was on has been discontinued.  I was getting increasing stomach pain; to the point of complete misery on Thursday.  The PCP started me on another one, Lopressor, which I take twice a day with food.  So far so good today!  I even had enough energy to take a long walk with my husband along our bay and waterfront.  It was a gorgeous day and just being out helped my frame of mind.  I always go with him or another friend who also has Lupus.  And I do carry my cell phone just in case.  The idea of reading in a bathtub sounds wonderful and very relaxing.  Where did you buy yours??
 
Laura

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 6/2/2013 5:47 PM (GMT -6)   
Hi Laura. After working in hospitals 18 years I think I've met every type of physician personality and I'm sorry you got the, "Don't bother me, this is just a job" specialist. I'm really fortunate that my cardiologist is not only versed in lupus, but so far he also cares. It just occurred to me that a cardiologist who doesn't specialize might give you better care.
 
I bought my bathtub caddy with the reading rack from mega-conglomerate Amazon. Yeah, tossing my $ to the man. Love, Donna

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 6/2/2013 8:35 PM (GMT -6)   
 
 
Hi Donna,
 
      I am just going to have to purchase one of those.  It really does sound wonderful!!  Where I live, we are limited in the physician pool....small rural area about 6 hours from the big city.  If I can't get answers, I will head south and get a referral to Stanford or UCSF.  They both have Lupus clinics.
 
Laura

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 6/2/2013 11:58 PM (GMT -6)   
Laura,

I hope that you can get a cardiologist that wants to help you. I know my cardiologist is great. He's really busy, but I just have to email him and he responds quickly.

I know that my Dr's are worried I may have an arrhymia, so they've implanted a cardiac loop recorder into my chest. It records my heart activity 24/7. If I feel something off or hubby/daughter were to find me unresponsive the hit a button on a remote device. It marks the data back 7 minutes.

Every 3 months, IF, I don't have any pain, I download my data via telephone. Kinda like an old modem and fax together. Then my Dr reads 3 months worth of heart rhythms. Maybe you could ask the next cardiologist you see about this.

I hope you are feeling better and keep us posted on how you are doing.

Hugs,
Barbara

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 6/3/2013 8:43 PM (GMT -6)   
 
Hi Barbara,
 
      I am feeling so much better!   Thanks for asking.  I had to go off of the Atenolol because it was causing some of the worse stomach pain I have ever had.  The new medication is working and I am not having any problems with it.  The cardiologist's office called today while I was at work, so I will call back and make an appointment.  The contraption they have you attached to sounds intriguing.  I am always amazed at what modern medicine can do these days!! 
       These next two weeks (well actually, nine days) will be stressful.  Our last day of school is June 13th, so everything is on high gear right now.  Lots to do, plus dealing with teen-agers that are running on spring fever and hormones!!  I am making sure that I take care of myself and get plenty of rest.  Hope everything is okay with you.
 
Love, Laura

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 6/4/2013 8:03 AM (GMT -6)   
Hi Laura and Barbara. I'm not only intrigued by Barbara's heart set up, I'm amazed! Now your cardiologist can view everything your heart has been doing over the long term and can read what's happening during crisis. Wow! Love, Butterflake

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 6/4/2013 7:48 PM (GMT -6)   
 
I did get an appointment with the cardiologist for the end of June.  They will be completing an echo-cardiogram, a 24 holter monitor and EKG.  I then meet with the doctor in the middle of July.  I guess we just go from there!!!
 
Love You Guys!
Laura
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