I can totally relate to feeling so sick and weak and not being able to make it to work. One bit of advice to protect you at work is getting your dr to put you on intermittent FMLA. He will stAte amt of hrs you can work. This has been a lifesaver for me. As an RN it is very difficult to be on my feet 10-12 hrs a day in addition to having to be up at 4am after many nights of only three hrs of sleep.
Currently at the end of my STD and returning to work next week. I pushed and pushed myself to work cause I like you had people who really don't understand any the End result were flare after flare. My dr wrote me back with hesitation, and he along with my husband want me looking for another nursing job less taxing. Rheumy says its putting too much strain on body causing major flare ups. I love my job, but I hate hurting like I was. For about
three weeks I was barely able to take more than a few steps.
Do what you can, listen to yourself. You and only you know how you feel and what you can do. I know it sucks when even our own family questions us.
I have started reading the book "Sick And Tired of Feeling Sick And Tired". It's really insightful and it might make you understand a little bit better.
Wishing you the best!