So as many of you know I just got dx with UCTD which according to my doctor is like Lupus without organ involvement. For years now some days I would wake up and not feel like going to work. I would not be able to put into words why I felt bad. But it was like even though I had been asleep all night I had not slept at all. And of course you cannot tell people you aren't coming to work because you are too tired. Plus it was not just tired. It was like I was coming down sick but I never got sick. An all over ache. Muscle pains, joint pains.
These days were an endless argument with my family. They thought I was being lazy. Since I could not explain I could not defend myself other than saying I am really sick. I admit I do miss tons of work. At most jobs I would be fired but my job is pretty safe. Anyway I feel like since I have gotten this dx I can say, see I was not making it up. I was missing work for legitimate reasons. There is a problem. Most normal people cannot sleep 16 hours and still wake up tired. My husband says he believes me but I still do not think he gets it.
Can some of you, if you feel like sharing, tell me your stories about needing extra time or to miss work or accommodations or basically anything you think would help my husband understand that I am not the only person who sometimes just cannot get out of bed. That I am not just lazy. He has really come around since January because it used to be a huge fight every time I missed and now he will not get mad most of the time. But I still just want him to see that I am not just weak willed. Besides the UCTD I have several other medical problems. Some are listed in my signature but not all.
Anyway thank you for listening to me. Sorry for the long post.
30 female. Sherrie, 2007 diagnosed with UC, also have Hypothyroidism, Intercostal Neuralgia, Agoraphobia, Bipolar tendencies, Panic disorder, Acid reflux, Lactose intolerance, Eczema, Migraines, Degenerative disk, Hypertension, and Anemia.
Lialda, Canasa, Hyoscyamine sulfa, digestive ad lactose defense, Cymbalta, lyrica, Lomotil , klor-con20, VSL 3DS, Rainbow light, Vit D, started Humira 12/31