Possible flare

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Teddtlove
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Date Joined Jan 2013
Total Posts : 1038
   Posted 6/2/2013 4:43 AM (GMT -6)   
I know I have started a bunch of new threads lately. I do not mean to monopolize the board. I was just dx with UCTD. I have felt bad for a long time but I think things are getting worse. I know Plaquenil takes a while to kick in. Have only been on it a week.

I have started running a fever. My muscles and joints hurt. Today I tried to run to three store. Quick trips. In and out in five minutes. Then went out to eat with my family. By the time I got home and rested for an hour it almost killed me to serve my family cake and ice cream for my mom's birthday. The exhaustion is making me unpleasant to be around. When I should have been enjoying my family's company, I was really just counting the minutes until they would leave.

I am going to my family doctor on Monday because I am having this weird vision thing and the eye doctor says nothing is wrong with my eyes. Do I call the Rhemi? Do I just give the Plaquenil more time to work? I just got off prednisone. I was on it for my UC from December till just about a week and a half ago. I gained so much weight and I was obese to start with. Is there anything besides prednisone they give you? Thank you so much.
30 female. Sherrie, 2007 diagnosed with UC, also have Hypothyroidism, Intercostal Neuralgia, Agoraphobia, Bipolar tendencies, Panic disorder, Acid reflux, Lactose intolerance, Eczema, Migraines, Degenerative disk, Hypertension, and Anemia.
Lialda, Canasa, Hyoscyamine sulfa, digestive ad lactose defense, Cymbalta, lyrica, Lomotil , klor-con20, VSL 3DS, Rainbow light, Vit D, started Humira 12/31

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/2/2013 4:15 PM (GMT -6)   
Does sound like a flare creeping in there. I would never try to do as much as you did today all at once, even if it was a quick run. Most of my flares fade after a week. If you're still feeling rough or feel worse I'd go to the rheumy.
 
Sometimes adjusting to being off predisone will affect my vision for a little bit.
What are you seeing with this vision issue exactly? It might be dry eyes going on.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Post Edited (couchtater) : 6/2/2013 3:19:17 PM (GMT-6)


Teddtlove
Veteran Member


Date Joined Jan 2013
Total Posts : 1038
   Posted 6/2/2013 7:45 PM (GMT -6)   
It feels like my brain and my eyes are not communicating. My eyes feel dizzy. Also once when i walked down some stairs i had tunnel vision. My eyes work so hard to try to correct the vision that it gives me a terrible headache. I went to an eye doctor and he said nothing is wrong physically but he did say I had moderately dry eyes. Come to think of it since I have been using the drops like he recommended it has gotten a little better.

Thank you very much for responding.
30 female. Sherrie, 2007 diagnosed with UC, also have Hypothyroidism, Intercostal Neuralgia, Agoraphobia, Bipolar tendencies, Panic disorder, Acid reflux, Lactose intolerance, Eczema, Migraines, Degenerative disk, Hypertension, and Anemia.
Lialda, Canasa, Hyoscyamine sulfa, digestive ad lactose defense, Cymbalta, lyrica, Lomotil , klor-con20, VSL 3DS, Rainbow light, Vit D, started Humira 12/31

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 6/3/2013 12:15 AM (GMT -6)   
Sounds like your body isn't adjusting well to coming off prednisone. I know it's a love/hate relationship with the stuff.

I've been on prednisone daily for 12 years now, I've never missed a day. I've never been below 10mg and was once on 80mg daily for 3 weeks.

The plaquenil can take up to 6 months before you begin to see results. It's really doubtful you'd feel anything after 1 week. With UCTD it's treated a lot like lupus. Basically, if plaquenil, and prednisone don't work then you move onto immuno suppressive drugs like Cellcept, imuran, methotrexate.

I'm on actually prednisone, plaquenil, and methotrexate. I've taken ALL of the immuno drugs except Gold injections, which they don't do anymore. I've even tried the new approved drug Benylsta. I've even tried Remicade and humira, nothing has worked for me, except when I'm on high doses of prednisone. Mind you I also have leukemia so I believe it's a factor in how badly I feel.

I've got osteoporosis so bad tho my Dr have been trying to decrease my prednisone. I'm now in so much pain at 18mg daily I can barely walk, so we've stopped decreasing for now. The bad part is I broke two more of my ribs last week. I've NO idea what I'm gonna do.

Even though you gain weight on the steroids you may have to remain on a low dose. I believe most folks that need the immuno drugs also take steroids in addition at first to slow down the flares. Once your flare is under control and the immuno drugs are working, then they will start to wean the steroids.

I hope your Rheumy can get this flare under control soon and you start feeling better soon.

Hugs,
Barbara

Teddtlove
Veteran Member


Date Joined Jan 2013
Total Posts : 1038
   Posted 6/5/2013 3:55 AM (GMT -6)   
Thanks everyone. I talked to the Rhemi. Since I already had my appt with my PCP she said to have them check me for a virus. PCP said it looks like I have a virus and gave me a steroid shot. Although I do not know why my hips are hurting so badly. I go back to the PCP Friday so I will ask more then. Thank you all.
30 female. Sherrie, 2007 diagnosed with UC, also have Hypothyroidism, Intercostal Neuralgia, Agoraphobia, Bipolar tendencies, Panic disorder, Acid reflux, Lactose intolerance, Eczema, Migraines, Degenerative disk, Hypertension, and Anemia.
Lialda, Canasa, Hyoscyamine sulfa, digestive ad lactose defense, Cymbalta, lyrica, Lomotil , klor-con20, VSL 3DS, Rainbow light, Vit D, started Humira 12/31
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