Hi Chawnie, I also have MCTD. Not all cases are alike. I was first diagnosed with Undifferentiated Connective Tissue Disease and the diagnosis was later changed to MCTD a couple of years later.
My fingers were swollen and had the appearance of sausages. I also had Raynaud's... my fingers and toes were turning white, blue and red. Joints ached, and I had skin lesions, rashes but not the classic lupus mask. Initially I was photosensitive, but am not anymore. Joints were swelling bilaterally, especially in my hands, feet, knees and elbows.
I started out on prednisone and plaquenil...then Imuran and now I'm on methotrexate. WE ARE ALL DIFFERANT! Some cases are mild, some moderate and some severe.
Skin was tightening on fingers and toes and I had several "dents", the largest on my forearm. Skin biopsies were taken and the results were that I had a variant of scleroderma. I also have fibromyalgia which is not an autoimmune disease but gives a painful allover achiness feeling.
Getting a dx takes time...hang in there!!!
MCTD is systemic meaning it can affect differant organs...I have mild pulmonary hypertension.
MCTD is usually suspected if you have + RNP and have overlapping features of SLE, scleroderma, polymyositis or RA.
Clinical symptoms are just as important as bloodwork. Take pictures of rashes, lesions or swelling to show your doctor. Some symptoms can dissapear before appointment time.
Good Luck to you
Fibromyalgia, Adenocarcinoma survivor, Lung Lobectomy, Heart Disease, Pulmonary Hypertension,
MCTD (Lupus, Scleroderma and RA)
Raynaud's, Degenerative Disc Disease, Osteoarthritis,
Osteoporosis, Hypertension and Migraines
"Where there is a will, there is a way"
Post Edited (crazykitty) : 6/12/2013 3:57:15 PM (GMT-6)