lupus brain fog

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sarahw22
New Member


Date Joined Jun 2013
Total Posts : 2
   Posted 6/12/2013 2:16 PM (GMT -6)   
My mum has lupus and its now effecting her brain. Shebis 56 years old. Im struggling to come to terms with it she is forgetting a lotbof things can anyone help me understand it

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/12/2013 2:41 PM (GMT -6)   
Sorry to here it's affecting her brain. You can help her by writing reminder notes and important things down for her.

Does she have someone living with her to help and watch out for her?
See if you can find someone to sit with her if not.

What medications does she take?

You can look at lupus.org for a full list of symptoms and tips for caregivers.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

sarahw22
New Member


Date Joined Jun 2013
Total Posts : 2
   Posted 6/12/2013 2:50 PM (GMT -6)   
Thank you for your reply yes my dad lives with her he helps as much as he can im worried that something is going to happen to her and im struggling to cope with it . She just seems to be going down hill rapidly.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/12/2013 5:01 PM (GMT -6)   
The nice thing about the fog is it can wax and wane. Unless she has cerbrel lupus.
The main thing is to be patient, don't hover, don't say you've already said that, do gentle reminders and notes to help to remember.
She's still the same person you love she's just having processing problems.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 6/13/2013 8:43 PM (GMT -6)   
Having a Mother with lupus can be very hard to cope with at times. I've had lupus since I was 23 years old. I'm now 48 and I have a 20 year old daughter. She, like you has a difficult time dealing with my illness. I have additional things to my lupus. I was just recently told I have a non curable form of leukemia. It's going to kill me and my daughter is struggling with that.

I can't offer you any promises that your Mom is going to get better, however, she may. Our lupus moves thru stages, sometimes we're really sick and then bam, we're doing well. I would suggest that you try to think positive, and even though she's forgetting things, try to think that she'll get better with time. One of the things you can do to help her, is make sure she's taking her medications like she should. You can also make sure that she's getting plenty of rest and eating right.

It's hard to ever think about your Mom not being around. I know, I've been there, my Mom passed away in 1998 of cancer. It was really hard to cope but I have tons of good memories about her. The difference between your Mom and mine, is Lupus ISN'T a death sentence anymore. Medical advancements have made it so that people suffering with lupus live longer and healthier lives. Try not to focus on how bad she is. If you still feel really uncomfortable about her, maybe you could ask her if it would be alright if you went to see her Dr and ask them some questions.

If she said that would be fine you could maybe go with her to her next appointment. If you live far away, maybe she'll okay you calling her Dr and talking with them. I did that when my Mom and Dad both got sick with their cancers. I lived far away they gave their Dr's permission to discuss their medical condition with me at anytime. I hope this has helped some. If I can do anything else, please just ask me.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Cateracts, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.
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