Late last year I was told that I may have Lupus or some autoimmune disorder. Positive on the ANA test, plus some of the markers that go along with it. Positive UI anti-rnp and indeterminate anti-dsdna.
After 8 years of chronically low WBC, High Lymph/Low Neuts I am now showing Atypical Lymphocytes in my blood work. All this time my PCP has told me that, though the WBC numbers didn't fall in the "normal" ranges, that they were normal for ME and not to be worried about. Twice in 8 tests I have actually come up with normal WBC numbers, but not most of the time. I now know that the chronic low WBC could be related to the autoimmune issues and that even though I was not always positive on the ANA...(was negative 4 years ago)..that it could have been brewing all this time.
PCP is telling me that she is concerned about possible lymphoma and bone marrow problems. This is why she is sending me to a hematologist/oncologist. Of course I am pretty terrified and wonder if I have been sitting on a time bomb for all these years? Was it just a matter of time before atypical lymphs showed up?
PCP also tested for EBV and I showed antibodies from having mono in the past, but no recent infections. Not sure what if any bearing this has on my current blood work.
When I came up positive ANA about 7 months ago, I didn't want to deal with it and kept rescheduling my rheumy appointments. Something clicked in me this past month, which made me get my CBC tested as well as make a firm appt. with the rheumy. Now I have one with the hematologist/oncology also.
Just wanted to now if anyone has experienced any of this and/or may have some input.
Post Edited (eveinca) : 6/22/2013 8:34:36 PM (GMT-6)