I am so sorry that you are dealing with lupus and family issues. I am lucky that I have a supportive family but have experienced people say that I'm faking it or why don't you feel better yet? In the beginning, my husband was very confused and I felt like he didn't believe me a lot of the time. I started making him come to my doctor's appts and read up on lupus. about
a month ago, I took him to a lupus conference that discussed different ways lupus impacts patients and also what its like to be a caregiver for a lupus patient. With all of these things, he has become very supportive, reminds me not to do too much, and offers to help more often. I don't know if any of this would help your family but at least its a start. I wish you luck and hopefully one day soon your family will understand that you definitely did not want this disease.
Nicole- 25, married, no children, Registered Nurse
Endometriosis, Lupus, Raynaud's, Degenerative Disc Disease, Migraines
Meds- Lo Loestrin Fe daily, Plaquenil daily, Prednisone daily, Prilosec daily, Celebrex BID, Tramadol prn, Dilaudid prn
~Don't worry about
tomorrow, tomorrow will worry about
itself. Every day has enough trouble.~