I'm so glad you posted this (however not glad you're feeling terrible). I was diagnosed a year and a half ago and I feel like I've never stopped "flaring." I've been on so many meds and prednisone up and down but have never gotten to that happy place of feeling pretty good. I do have some good days, usually after I've been in bed the entire day before but at least I do have a few. I was on cellcept until I had a scary blacking out/confusion incident where I drove and shopped and remember nothing about it. My rheumy stopped my cellcept hoping it was just that but now all I'm on is plaquenil and prednisone and feel even worse than before. I feel like I tackle one symptom and another shows up. I can just never get ahead of it and am always hurting somewhere. I hope you start to have more good days than bad but know on your bad days you are not alone.
Nicole- 25, married, no children, Registered Nurse
Endometriosis, Lupus, Raynaud's, Degenerative Disc Disease, Migraines
Meds- Lo Loestrin Fe daily, Plaquenil daily, Prednisone daily, Prilosec daily, Celebrex BID, Tramadol prn, Dilaudid prn
~Don't worry about
tomorrow, tomorrow will worry about
itself. Every day has enough trouble.~