I'm having a really rough time right now I've been on short term disability for 3 weeks now and off of CellCept this entire time. My rheumy discontinued it b/c of my confusion and black out spell. I feel like complete crap, taking pain meds out the wazoo, and have been counting down the days until I get to see my rheumy so we can start a new med and I can get back to work and back to my normal life. So on Wednesday my doctor's office called and said my doctor had a family emergency so all of her appointments for the week would be cancelled. I called today to check in and they said she will be gone for at least a month and they will call to reschedule once she returns but there is no one covering for her. Now what am I supposed to do? They said they will call her and see if she wants me to start a new med (subq injections of mtx, Cytoxan, rituxan, or other is what we discussed before) or what she wants me to do. I feel very nervous about starting a new med with no contact with her but I am miserable and am supposed to return to work on the 15th. Also, I have papers for work I need signed with no one to sign them. So I guess what I've come to is that if she prescribes a med, I'll visit my PCP, let him know what's going on in case I have problems, have him fill out my papers and go from there. If she doesn't prescribe anything, I guess I'm going to have to find a new rheumy. I absolutely love my rheumy so I'm super upset and the last rheumy I visited for a second opinion was TERRIBLE! I feel like I have this black cloud over me at all times.. someone please help!! And if any of you are from Southern IL or the St. Louis area and have a wonderful rheumy to recommend that would be great! I'm trying to think positive thoughts with all the stuff that's been going on but I'm honestly starting to get very depressed and worried I need some help in that department too..
Nicole- 25, married, no children, Registered Nurse
Endometriosis, Lupus, Raynaud's, Degenerative Disc Disease, Migraines
Meds- Lo Loestrin Fe daily, Plaquenil daily, Prednisone daily, Prilosec daily, Celebrex BID, Tramadol prn, Dilaudid prn
~Don't worry about
tomorrow, tomorrow will worry about
itself. Every day has enough trouble.~