I was recently diagnosed with Lupus. I'm struggling with finding a balance in my life that will not make me feel horrible. I had one flare in April that I chalked up as the flu, however I have not felt 100% since the first day I got sick. If I go on a trip or do much physical activity I end up feeling terrible with severe joint pain, however at times, the feeling of exhaustion and pain may only last for a week then I wake up feeling better. This is what happened yesterday. I woke up feeling amazing, went for a run, worked all day, then swam and today I was barely able to get out of bed and go to work. My body is aching all over, my ankles and feet are swollen and painful and my hands, wrists and shoulders are now starting too. Since I am so new to this, is this considered a flare? I'm able to physically get out bed, however it took a couple hours to get my body to work with me. I'm feeling muscle weakness and exhaustion everywhere and just want to lay down and sleep but know I have to keep pushing through it. I'm not on any meds yet since I can't get in to see my rheumy for another month.
Any insight you can provide is welcome. I'm a mentally strong person, however the feeling of helplessness, loss of control over my body and pain has been more than challenging. I really enjoy running and doing triathlons so accepting this and finding a balance that works is beyond challenging.