New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Virginia1976
New Member


Date Joined Jul 2013
Total Posts : 16
   Posted 7/9/2013 8:59 AM (GMT -6)   
I am a 37 year old mother of a 19 year old and an 8 month old. I am hoping you may be able to give me some advice as I am at my wit's end right now. So, starting back in May, I went to the doc for a sinus infection and to back that up, the very first symptom I had was I felt the right side of my tongue "swell" and it felt like I had gone to the dentist. It was weird, and was very intermittent, but when I went to the doc, she told me everything looked fine. Well, I got on Amoxicillin and a nasal spray - good enough. Continued with a little of the tongue issue but was intermittent. One week later, I was at work and all of a sudden, it was as though someone was squeezing my forearms and I could hardly write. I was terrified. As the day progressed, it subsided but I went to the walk in in a panic. The sinus issue was still there as well. So, the doc said that the arm issue was likely something physiological related to my sinuses opening up and gave me a stronger antibiotic. By the following Wednesday - I still felt miserable so I was able to get into MY doctor. He was perplexed but felt as though I has some serious sinus stuff going on. In the meantime, I was having occasional muscle fatigue, and still the issue with my mouth. I also noticed that when I eat, it would really tug at the back of my mouth. So, I read some things online and it said to eat some sour things - and eventually the swelling on my face and in my tongue went away. My doctor gave me steroids, antibiotics and I felt great on the antibiotics for 5 days. He ran ANA, Sed rate, Vitamin D - you name it , he ran it. All came back normal except for the Vitamin D - severely deficient. So, I accepted that - he also wanted to put me on an anti anxiety med but I refused because the only thing stressing me out is not knowing what is wrong with me.
 
Well, I continue to have the issues with my arms, and now in my legs, the Dr. suggests possible Fibromyalgia? All I can do is imagine the worst. I have worked myself into a tailspin. I believe I have times when things flare up - 2 weeks ago, my arms turned red, and my face turned red in the T zone area every time I  ate certain things. And here I am again, the arms are red, weak, and my face feels almost sunburned, and I have diarrhea during these times - and then two nights ago, I awoke with aching thighs and they are now a little weak.  In addition, the area under my jaw on both sides is swollen and tender. I had also went to an ENT for the jaw and he had no idea - told me to see a dentist (but I swear it's my salivary glands). Can you help?? Any ideas? My PCP is hesitant to send me to the Rhuematologist with negative test results, but after everything I have read, I wonder if I have Lupus? Oh, and I am also losing weight like crazy - and they have "ran every test possible" and find nothing.
 
I hope to hear from you, I am so lost and miserable.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 7/9/2013 9:38 AM (GMT -6)   
Lupus is diagnosed by having 4 of 11 symptoms, not by blood tests. The decision (by the PCP) to bypass the rheumy isn't accurate. Not only does a rheumotologist diagnose auto-immune diseases like Lupus and Sjogren's, a rheumy would also be the right person to see for Fibromyalgia.

Even if you don't decide to see a rheumy, please see someone else -- these are not particularly rare symptoms and it seems odd that the PCP can't come up with anything.

Come back and see us!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Virginia1976
New Member


Date Joined Jul 2013
Total Posts : 16
   Posted 7/9/2013 9:52 AM (GMT -6)   
I want to see a Rheumy, and that is what I am going to request for sure!
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, June 22, 2018 11:22 AM (GMT -6)
There are a total of 2,974,478 posts in 326,182 threads.
View Active Threads


Who's Online
This forum has 161253 registered members. Please welcome our newest member, mattjyg.
378 Guest(s), 10 Registered Member(s) are currently online.  Details
TheIsomotion31, lymenc4, Girlie, AJMan, Saipan Paradise, quincy, LJohn23, 1039smooth, TheJay, Charlie1950