I've been browsing these boards for a while now, and I was going to refrain from making one of these posts until I got my test results and such back. But my doctor called today to inform me that the Lab was backed up, and it would be several weeks before I got them back. He also decided to tell me that he felt there's a good chance I have lupus, and to make an appointment with a rheumatologist right away.
So, I've been panicking before. Now, I'm really panicking. My anxiety is so high right now and I really need someone to help me calm down.
I'm 21. I was initially diagnosed with chronic urticaria in April, because my first symptom was hives all over the body, including facial/lip swelling, hands & feet etc. First allergist literally said "Yeah, I see this all the time. Your body is fighting against itself. These things can last up to 4 months. Bye." I was put on prednisone for a little over a month, and then I tapered. I also had other symptoms that included joint pain, and stomach aches/terrible GERD/reflux. They also disappeared on the prednisone.
This allergist also did some tests about
a week after I got off the prednisone. I never got to see them myself, but according to him "kidney function was perfect", WBC was really high (it has since gone back into normal ranges) which he attributed to the prednisone. Sedimentation rate was high, which he said was consistent with an infection, and that I was slightly anemic, just very, very slightly.
But, when I got off the prednisone, everything flared. I had swollen feet and hands that I could not use, hives everywhere, fatigue, acid reflux.
So, I went to another doctor for a second opinion. This is the doctor that thinks I have lupus, and the one who said my tests they ordered won't be back for a really long time. However, they did do a few in house, which revealed...
1:160 Titer ANA
Sed rate was still high
Antibodies for cytomeglovirus (indicating recent past infection)
Antibodies for epstein barr virus (indicating recent past infection of mononucleosis)
all the thyroid stuff normal.
no weight loss (actually can't get rid of the weight i gained on prednisone!)
no hair loss
So as you can see, I'm very concerned.
A couple things I will note.
-no one has ever told me I was anemic before, so this is new.
-i've also never had mono before, despite being tested many times (I'm a college student...duh!)
I also looked up that list of 11 symptoms, and only "arthritis" and "positive ana" test apply to me.
I know you all don't consider yourselves experts, but I may give myself a heart attack if I don't get some commentary on these symptoms.
Currently taking Prilosec, Zyrtec and Zantac.
So...does this sound like lupus to any of you?