It doesn't sounds like your rheumy is particularly helpful. I would try to get a second opinion from another rheumotologist.
A good way to find a rheumy experienced with Lupus is to check with www.lupus.org
- find your local chapter, then contact them to see what local rheumies are on their board - these are the folks actually interested in helping Lupus patients. Your current Dr doesn't seem very helpful at all.
Lynnwood, Lupus & Sjogren's ModeratorDIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde