Photosensitivity

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imarunner78
New Member


Date Joined Jul 2013
Total Posts : 12
   Posted 7/16/2013 10:41 AM (GMT -6)   
I'm hoping to get others experience with photosensitivity.  I had minor effects from it before, swelling and pain in joints and fatigue if I was in direct sunlight, however on Sunday I believe I went in to flare (still learning since I am new to lupus and all of it's ramifications) and have been unable to do much. 
 
I tried to go in to work yesterday because I have a deadline this week and as soon as I walked outside I became light-headed, dizzy and nauseous.  I made it 3 minutes into the drive and had to turn around and come home because I felt so out of sorts and couldn't focus.  By the time I pulled in my driveway I barely had enough energy to walk into my house.  Has anyone else had this type of effect from photosensitivity?  I'm wondering if that's what happened or if something else is going on.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/16/2013 11:54 AM (GMT -6)   
You sound like me. The sun and fluorescent lights will make me so ill. Halogen bulbs can make me sick in a minute.

You really need some sun protective clothes and hats.
There are many places that sell sun protective clothing:
Acadamy Sports
Coolibar.com
Sungrubbies.com

I have to make sure I'm fully covered when I go outside. I also have to avoid the sun during its zenith (11-4pm). I wear heavy jeans, sun protective shirt or jacket, gloves, and a special sun hat with wide brim. Sunscreen on face helps.
It does get hot in the summer, but coolibar uses lightweight fabrics. I've adjusted to the warmer weather thank to their lighter fabric.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

pbjsammich
Regular Member


Date Joined Jun 2012
Total Posts : 66
   Posted 7/23/2013 7:27 PM (GMT -6)   
yup you are sun sensitive. Cover up, wear sunscreen on all of the places not covered by clothing. Wear sunglasses, and a hat when you go outside. I would venture to say do this on cloudy days as well.
It's a learning process of what you can and cannot do, everyone is different for what works for them. Also, that deadline thing-stress is a major cause of a flare. I giggle at this, sorry, mostly because I think that having lupus is a major stressor and hmmm, isn't that a cause of flare-ups? sorry.
I believe in finding some kind of humor in things...
hope you feel better and get on with things.
pbjsammich

RA SLE Acid Reflux/GERD Costochondritis PTSD

Ain't Life fun? :)
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