Hi there! I have been on dialysis 2 years. It sucks, I am not going to lie, BUT to not even try totally confuses me. Yes, we all are going to die, that is true. But if you believe your kidneys are to the point of dialysis, then why not go ahead and get on UNOS (United Network for Organ Sharing) transplant list and possible continue cellcept until a new kidney is found and you can get a transplant and return to a somewhat normal life?
Also, what kind of doctor are you talking too? She explained dialysis wrong to you. There are 3 types to choose from. 1. In center Hemodialysis (the one most people talk about)
2. Peritoneal Dialysis (PD) done at home
3. Home Hemodialysis. (HHD)
With in center you go to the center 3 days a week for 3-4 hours. I have been doing this since October and have no issues of needing to up my time. There are many things that can be done vs upping time plus, medicare wont pay for more than 3/4 times a week.
PD is done in your home while you are sleeping. That's right, you don't even know you are doing it. I did this for a year and loved it. Actually looking at going back on it. Had to switch to incenter for a few reasons. This is a great form of dialysis as 1. no blood and needles are involved and 2. done at night by a machine.
HHD is done 6 times a week for 2-3 hours. This is also better than incenter because it is more like your kidneys working. Wont have horrible dietary restrictions associated with dialysis.
If you have certain questions about the above types of dialysis or transplant process I would be more than happy to help you. You are right, it is your choice to end your life BUT when I was doing research and came close to that decision we realized cellcept made me super depressed/suicidal. After coming off it, things improved a lot and I wanted to fight to live. But yes, if you get to the point of kidneys failure and death, they will make you comfortable as possible until you pass on, which I really hope you don't decide to do. If you do decide to go that route, please make sure you are an organ donor so other people who want to live, may get their lung transplant, heart, or liver transplant they need to keep fighting to live!
the good thing about dialysis is once you get to that point, your lupus will typically burn itself out, meaning not cause more problems. You won't have to take cellcept. Dialysis sounds scary but its not that bad. Especially the home options. I am here, been on every medication used to treat lupus except methotrexate and benlysta so could also recommend other meds you might tolerate better. Hope you are doing ok!
dialysis from lupus nephritis