Positive ANA Positive dsDNA

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Swamijenn
New Member


Date Joined Jul 2013
Total Posts : 4
   Posted 7/26/2013 2:04 AM (GMT -6)   
Hi there. I am new to this forum. I am wondering if a positive ANA and positive dsDNA equal Lupus? My physical decline started with a sudden onset headache in December of last year. After 4 ER visits, numerous neurology visits, labs were done. They came back with a positive ANA and positive dsDNA. My rheumatologist says l have "possible" Lupus, Spondyloarthropathies, Fibromyalgia, and psoriatic arthiritis. My sediment levels were normal. I have photosensitivity, pain in my head, spine, neck, shoulders, elbows, wrists, fingers, hips, and feet. I have been experiencing hair loss for about a year. I went from being an active massage therapist to being in bed most of the time. I used to be articulate and had a sharp mind. Now I search for words and am very forgetful.

How do I get a diagnosis? Can a person have this many things at once?

Thank you for any help.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 7/26/2013 10:25 AM (GMT -6)   
Swamijenn said...
I am wondering if a positive ANA and positive dsDNA equal Lupus? ... My rheumatologist says l have "possible" Lupus, Spondyloarthropathies, Fibromyalgia, and psoriatic arthiritis. ... How do I get a diagnosis? Can a person have this many things at once?


Unfortunately, Lupus, Spondyloarthritis, and Fibromyalgia are all diagnosed by a set of symptoms, not by specific blood markers. In general, Lupus responds to Prednisone and Fibro does not. I think Spon. can be eliminated by testing a specific gene marker.

Check out the list for diagnosing Lupus, 4 of 11, as seen in the link below. There are similar lists for Fibro and Spon. These diseases are all difficult to diagnose, many of us it takes years to get a firm diagnosis. Is you rheumy saying you have all of these or that you may have any of these? With overlapping symptoms, it's really difficult.

The most important thing is that your symptoms are being treated and alleviated. If this rheumy is hesitant to do that, I'd suggest a second opinion. One way to make sure your rheumy is up-to-date on Lupus is to find your local chapter of www.lupus.org, then ask them which local Drs are active on their advisory board -- these are the guys who have the best Lupus knowledge.

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Swamijenn
New Member


Date Joined Jul 2013
Total Posts : 4
   Posted 7/26/2013 11:10 AM (GMT -6)   
Lynwood,

Thank you so much for your reply!!! I have a positive ANA and dsDNA and photosensitivity therefore my Rheumy thinks I have Lupus SLE. She also said I have Fibromyalgia. She thinks that I have Spondyloarthropathy if the spine because of my symptoms and my brother having Ulcerative Colitis and my sister having Tenosynovitis. The Psoriatic Arthiritis is just a guess at this point. She is not 100% certain about Lupus but wants to treat me with Plaquenil for the Spondyloarthropathy which will also treat Lupus.

It is so frustrating! I don't know how to get the answers I need. I am normally a pitbull of an advocate for my family but I am so weak and inarticulate right now. I am having trouble advocating for myself.

Do you have any suggestions for what I should ask my Rheumy to do e.g. other blood tests, etc? Thank you for the links that you provided. I am going to check them out.

By the way, I just turned 40, I have an 18 year old and a 14 year old. I am taking 2700 mg of Gabapentin, 60 mg of Baclofen, and 1 50 mg tab of Tramadol at night only.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/26/2013 12:33 PM (GMT -6)   
Are you being careful with the photosensitivity?
I have it and have to make sure to avoid all sources of UV light (sun, fluorescent lights, and halogen). If I get too much UV light I have more pain and fatigue.
I've bought clothing to help block the UV light. You can find simple clothing online. Some places I like are coolibar.com, sungrubbies.com, and Acadamy Sports.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Swamijenn
New Member


Date Joined Jul 2013
Total Posts : 4
   Posted 7/26/2013 1:12 PM (GMT -6)   
Hi Joy,

I am being super careful. I had a terrible pain flare a couple of weeks ago from being outside (with a hat, long sleeves, sunscreen, and sunglasses) so I am just staying out of the sun completely if I can at all help it. It also gives me a rash on my arms, chest, and face. It is Summer but I wear long sleeves every day! :)

I did not know that about the flourescent and halogen lights. Thank you so much for the information. Another reason for me to stick with my energy-inefficient light bulbs!

Does the clothing with SPF really work? Have you noticed that even being in the shade on a sunny day affecting you?

Jenn

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/26/2013 5:01 PM (GMT -6)   
SPF clothing gives me a few extra minutes outside. I can go to the store for a few groceries without too much issues.
Even under shade or cloudy sky I can still get exposed.
My house is lit with led lights mostly. I have thick blinds which stay closed. I feel like I live in a cave. I joke with my family about turning into a vampire because a lot of time I do things at night.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Swamijenn
New Member


Date Joined Jul 2013
Total Posts : 4
   Posted 7/26/2013 6:17 PM (GMT -6)   
Joy,

I appreciate your candor about your photosensitivity. I thought it was in my head that I felt more pain and extra crummy even after a few minutes in the sun and spending time outdoors in the shade. It makes my cheeks get red and rashy, even my ears. I live in Washington so the sun should not be a problem a lot if the year. Right now it is blazing.

So does even a little sun like through a car window have an affect?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/27/2013 1:16 AM (GMT -6)   
If your car windows are not solar shielded you will get a good dose of UV rays.
Riding in my car for long trips, even with my sun protective clothing, will cause my arms to turn beet red. I came back from a two hour ride to see my sister in SC and my arms looked like I had the measles. My left elbow was so tender for several days.
I live in northern GA and the heat and sun are terrible right now.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))
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