Hi txplowgirl. It's always good to rant and it always releases anxiety. I'm so sorry that you can't see a rheumatologist because once you see one, he/she will be one docs you see most. My lupus also began with neurological problems. There aren't too many lupies who start that way. I was initially brushed off by the neurologist who told me I had a somatiform disorder (all in my head) and it took two years to be diagnosed.
Anyway, since I have a BS in Medical Technology (lab) I hope I can calm your anxiety a bit more by telling you that blood is frequently found in urine with a urinary tract infection even in healthy folks. It is caused by the bacteria irritating the lining of the bladder. Yes, lupies often have kidney problems, but one of the first signs is large amounts of protein in the urine. Also the common blood tests of BUN and creatinine will be elevated. Only if all these are high will a kidney biopsy be done and then only if the kidney problem continues to be a problem. Kidney biopsy is one of those tests done that are way down the list.
Systemic Lupus also often causes rashes, hives, and itching. Most of us are also sensitive to the sun. Some develop flares just from being in the sun. I recently posted a reply for itching, so I'll make this brief. Bathe or shower in cool water, wash only the important areas with Dove or Neutrogena glycerine soap, and while your skin is damp rub on oil. Use moisturizers during the day and Benedryl pills and spray as needed.
I hope you get to see a rheumatologist soon and I really hope you get your itching under control! Love, Butterflake
Lupus '05, Sjogrens, fibro, major depressive disorder, CNS problems, GERD, colitis, 1st stage kidney disease. Many meds: better living through chemistry