Pre-Diagnosis Symptoms

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New Member

Date Joined Aug 2013
Total Posts : 1
   Posted 8/5/2013 8:40 PM (GMT -6)   
Hello Everyone,
I am new to this and have actually never been in a chat room. I was wondering is anyone who has been diagnosed with Lupus ever had any other diagnoses before that one. My mother and grandmother both have Lupus, and I have been diagnosed with another autoimmune disorder called chronic urticaria. Urticaria is just a technical term for hives. I get them everywhere inside and out. I cant digest food and can barley breath without my medication. I have been doing alright taking ranitidine, hydroxyzine and montelucast. I still sometimes breakout when it gets close to time for my medication. Recently though, some weird things have been happening. I am getting these weird dizzy spells and my coordination is off. I dont really know how to explain the dizziness because it isn't like the whole room is spinning, but more like I cant focus and everything seems blurry or far away. Also, I am a waitress and I just finished school. My balance is pretty good and my typing skills are generally pretty good, but that is not true lately. I am making many typing mistakes and I find it difficult to balance a tray full of food these days. I guess my main concern though, is when I am driving. I have a 3 year old and I looked back at him for a split second today and when I turned back to the road, I had one of those dizzy spells and swerved into the other lane.

I noticed that many of you seem to have similar symptoms and I was hoping I could get some advice. If anyone has any ideas of what I can do to keep this under control, I would love to hear it. This has been happening for about 4 days now and seems to be progressively getting worse. I plan to call my doctor tomorrow and after what happened today in the car, I am really scared. Anything would help me right now, I think.

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 8/5/2013 9:25 PM (GMT -6)   
I've been having some dizziness and coordination issues too. I'm seeing a nurologist right now to find out the reason. I'm talking to him on Thursday about my MRI and bloodwork results.

Do you get sudden headaches that blast in and are gone just as fast? I'll be feeling good and suddenly I have a spiking headache. I can't open my eyes or stand hearing anything during this headache. It lasts about 2 minutes for me.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 8/9/2013 4:29 PM (GMT -6)   
Hi Jamie421 and welcome to our forum! It's common for folks to have more than one autoimmune disease. Although your Mother and Grandmother have lupus you may have completely different autoimmune diseases, or lupus.
There are so many illnesses and diseases that cause neurological problems, including dizziness and balance problems. Everything from ear problems to complex diseases. Neurological problems were some of the first signs that I had Lupus. I had dizziness, frequent falls, tremors, loss of sensation, and cognitive problems (can't think straight or remember things). I went through a phase that lasted a few months when I couldn't drive because of double vision and blurred vision. Luckily I live in a metropolitan city with a decent bus and train system and even more importantly, by the time this vision problem happened I was already on permanent disability from Lupus.
Please let us know what your doc has to say, okay? Love, Butterflake
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, diastolic heart failure, GERD, 1st stage kidney disease. Many meds: better living through chemistry

Sjogren's Moderator

Regular Member

Date Joined May 2010
Total Posts : 66
   Posted 8/10/2013 1:24 AM (GMT -6)   
Hi and welcome to the forums.
I was diagnosed with Fibromyalgia first, then a gluten intolerance, then Hypoglycemia, then all my back problems, then Rynauds, then Gastritis, then I started seeing a neurologist because I started having balance and dizziness issues. That's when I was dx'd with Lupus.
My dizziness and balance issues were due to anemia. I had to have a blood transfusion. You could be vitamin deficient, it could be due to several different things.
It's been a wild ride.

Post Edited (txplowgirl) : 8/10/2013 12:27:09 AM (GMT-6)

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