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Big Sexy
New Member

Date Joined Jul 2013
Total Posts : 1
   Posted 8/10/2013 6:59 PM (GMT -6)   
Hello, am new to this web-site.  I didn't  know which disease to pick since I have 3 chronic diseases.  So I decided to go with lupus since it is the last one I was diagnosis with.  I received the news on 6/11/2013.  I just need to say how am feeling to someone  that can identify with what am feeling.  I have been dealing with auto immune hepatitis since 2004.  Before that in 1999 I was diagnosis with hepatitis c.  That is in remission and doing good.  But my liver is so damaged that I have cirrhosis and have been on the  transplant list for 2 years now.  Taking many meds.  November, 2012 diagnosis with diabetes.  Straight to insulin 5 shots a day.  Now lupus!  Its like I starting have joint pain in April and now it hurts to walk.  Am just having a hard time accepting this.  Where is the light at the end of the rainbow?  My family just act like there is nothing wrong with me.  Why you tired, why you don't want to go anywhere. Oh you fine!..  Hello people where have you been and am tired of  explaining the same thing over and over.  Am really scared of this lupus! confused

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 8/10/2013 8:19 PM (GMT -6)   
The first year of lupus can get frustrating at times. You hurt, you're tired, and it seems like it will never end. Once the rhuemy gets your meds balanced you'll feel better.

There is up days and down days. I'm still learning to deal with this myself. I go to a psychologist to help me develop coping skills to deal.

My mother says it's a new and difference life than before.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Regular Member

Date Joined Feb 2011
Total Posts : 399
   Posted 8/10/2013 8:40 PM (GMT -6)   
I often felt the same way you do when I was first diagnosed.  People would say to me "You don't look sick" and it would drive me crazy.  I sometimes said to the people closest to me that I wish they could feel what I was feeling inside of my body.  Perhaps then they would understand.  This is a great place to ask questions, get support, and vent if you need to.

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 8/10/2013 10:08 PM (GMT -6)

Here is the link to an essay that often helps explain our lack of energy to friends and family members.

Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde
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