OKAY I QUIT, MAJOR VENT

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Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/18/2013 9:16 AM (GMT -6)   
Man oh man I swear I've had it now. I have attempted to type out a post twice and both times hit the delete button and lost a VERY long thread about why I HATE MY LIFE!

So now it's short and sweet, please send me prayers and positive healing energy. As most of you know I've been struggling for months now. Seems like I can get out of this never ending flare.

Saw my Rheumy and he upped my steroids back to 20mg and increased my MTX to 30mg weekly in shot form. My PCM and Rheumy gave me a shot in my left Peronal Tendon on Thursday afternoon. They had thought I had Achilles tendonitis in both feet. After seeing me last week they said not Achilles in my left but Peronal.

It's amazing how good I felt after my shot. Things didn't hurt on Friday, even managed to try a couple of new PT exercises. Well, ALL that wonderful stuff went down the drain last night. WHY DO I ALWAYS HAVE THE BAD LUCK? I've been good to people, lived a clean life, treat people like I'd like to be treated, you know I'VE BEEN GOOD!

I just don't understand why I can NEVER HAVE A GOOD THING HAPPEN TO ME. The story is to long to type and I've done it twice, so here's the short version. Last night after we had sat out in our back yard enjoying our fire pit and roasting hot dogs. A very cute, thin red fox joined us in our yard.

He wasn't afraid of us and kept coming towards us, I got scared and went to rapidly get into our back door. Once I took that first step I hear a HUGE POP and searing pain in my left foot. My right leg begins to burn too. Guess all my sobbing and crying frightened our little friend away. After a lot of AGONY hubby got me into the house, then in the car to the ER.

I have a Complete Achilles Tendon Rupture and a Peronal Tendon Rupture in my left foot. The Ortho Dr isn't sure I'll be able to undergo surgery to reattach everything I may have to let it scar over to heal itself. He splinted me with a hard splint on the back side of my leg, and soft in the front. I pulled my hamstring in my right leg so it's VERY HARD to even stand up. Dr said I'm in rough shape and need to stay in bed for awhile.

They released me and we were home by 1am this morning. The Ortho clinic will call me on Monday for an appointment to see them. My cataract surgery went well but really that's all that's been good over the past several weeks.

I'm very disappointed because daughter moves back to college next Sunday and I'm gonna bet I won't be able to help with her room. She's in an old building on the 3rd floor, no elevators. She has a single room and I was so looking forward to seeing it. MAN DO I HATE THIS, LUPUS TAKES EVERYTHING FROM ME. I swear I just wish my leukemia would go ahead an advanced and take me away from all of this. I'VE HAD ENOUGH PERIOD!

Anyway, I need some prayers and healing energy if you are all up to it. I truly don't know how much more I can take with my HEALTH stuff. Instead of praying to get better, as of late been not asking for myself, I see only others getting their prayers answered. I'm thinking that God hates me or something.

I will post an update as soon as I know more. Thanks for listening and being here, you are the only ones who get it on how I'm feeling. My pain was so bad last night I was beyond being able to console, hubby has NEVER seen me like that he was rather upset I know. Pray for hubby and daughter as they have to do a lot, while I'm on bed rest.

Love,
Barbara

Love,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Cateracts, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/18/2013 2:54 PM (GMT -6)   
(((((((((((((((Long, gentle hug)))))))))))))))))

I'm so sorry you're in such pain. I hope your leg feels better.
Rest well and try to take it easy.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 8/18/2013 5:36 PM (GMT -6)   
Barb,

So sorry about your tendons -- that sounds horribly painful and hard to treat! I hope the extra prednisone starts giving you some relief soon.

Also sorry you can't see your daughters room, but she and hubby can take pictures. You definitely don't need to try & walk up 3 stories. Stairs (in either direction) are death to Achilles & other heal tendons.

I know the PT is to help you get moving, but it doesn't seem to me like moving is the best thing for your ankles right now. Unless you can float in water and gently kick -- and I'm not sure how you could get in/out of water without hurting yourself.

Many heartfelt prayers and healing energy coming your way.
Hugs,
Lynn
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 8/18/2013 7:07 PM (GMT -6)   
 
Hi Barbara,
 
       I don't think that God is mad at you.  Life simply just does that sometimes and I don't know why.  There have been times when I have screamed at the Universe for being so unfair, which helped, because it gave me the space to vent.  I am really sorry that you are having so much pain.  It sounds excruciating.  I am wrapping up some sunshine from the Pacific Coast and sending it your way....as well as a very gentle, loving (((((((((((((Hug))))))))))))))).
 
Love, Laura

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/18/2013 8:47 PM (GMT -6)   
Dear Barbara,

I saw your post on HW CP, and just had to come here and write to you. We know each other quite well, and share in a lot of common suffering. Sure hated to read this severe and latest vent of yours, but I assure you its well justified.

Never think that God is mad at your, or punishing you in some way, or singling you out. That is dangerous thinking, and if you feel that way you need to get it right out of your head.

In the "good book", we are told that it rains on the just and the unjust. I know many godly people that suffer in unbelievable pain and terrible circumstances. It is often their faith alone that keeps them from giving up.

I have told you before, your life is important. It's important to your family. To your friends in real life. To your friends at HW. To you. And your life is important to me.

I don't know why you should have to suffer so much, can't answer that, anymore than I can answer why I have to suffer so much with multiple cancers, CP, and CF. It's simply the cards I have been dealt in life. Don't take it personal.

You have been fighting a good fight, for a long time. Please never give up that fighting spirit. Do not let the Lupus, the pain, and the other ailments you are fighting to get inside your head. That is one of my secrets, I refuse to let my maladies take over my brain and thoughts, that is what keeps me going. My body might be going downhill a piece at the time, and you know in my situation with the advanced prostate cancer and all the nerve damage I have, I am never going to get better, its only going to get worse over time. Yet having said that, I refuse to give in to it, I refuse to let it define who I am as a person. The real me is still very much alive and well, even though my body isn't.

I have no magic answers for you, no way to cure you of any of your ailments, but I do know first hand what it's like to suffer endlessly. It's no fun being awake 18-20 hours every day hurting, and then having little quality sleep, and then waking up and being right back where you were before. But such is life right now.

I am here for you, as many others are. Right now, you need a helping hand along your path, we are here to help hold you up, and to encourage you, even if it's one step at the time.

I got to get my Skype up for you, so we can see and talk at the same time. I will really try to get it done, and will let you know.

In the mean time, if you need anything, and I mean anything literally, just e-mail me, and I will do whatever I can within my means to help you.

Please never give up hope. Every day is still a gift, and still has beauty in it, even though its hard to see sometimes when one is suffering so much.

David in SC
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
Open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/19/2013 12:27 AM (GMT -6)   
I just thought of something..... maybe God caused your foot to get hurt to scare off the fox. The fox sounded possibly rabid for it not to be scared of you. He does work in mysterious ways.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

TXplowgirl
Regular Member


Date Joined May 2010
Total Posts : 66
   Posted 8/19/2013 1:29 AM (GMT -6)   
Hi Barbara,

I wish I could give you a hug and shoulder to cry on. Will be sending prayers your way for you and your family.
Systemic Lupus, Connective Tissue Disease, Fibromyalgia, Chronic Fatigue Syndrome, Chronic Anemia, Rynauds, Anxiety, Depression, Athralgia, Bulging Discs in Neck and lower back, Curved spine between shoulder blades, Osteoarthritis, Osteoporosis, Chronic Gastritis

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 8/19/2013 10:18 AM (GMT -6)   
Hi Barb. I just wanted to add that yes, you are a very good person! You're good to everyone you know and I bet you are even good to strangers. You have a kind heart even if it doesn't work well physically. You deserve the very best! It's extremely unfair for your body to fall apart bit by bit. I'm certain God doesn't hate you, but I have no answer as to why you must suffer so much.                        
 
Please rest in bed and be open to receive the prayers and energy we send to you. You're often in my prayers. I love you Sweetie. Donna
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, diastolic heart failure, GERD, 1st stage kidney disease. Many meds: better living through chemistry

Donna
Sjogren's Moderator

Lynnster
Regular Member


Date Joined Nov 2012
Total Posts : 264
   Posted 8/21/2013 12:57 PM (GMT -6)   
Oh Barbara, how my heart hurts after reading about all the problems that you are having. You definitely need a break from all this pain and I wish I could take it all away for you. Please don't ever think that God is mad at you and he is punishing you for something. I had this mindset when my son was killed and I would get so mad at others that were laughing and carrying on living their life when I was dying inside. I blamed God and anyone else around that I could but that never brought him back or made me feel better.

You are a wonderful person with such a sweet spirit and you know that he gives the hardest things to the strongest because you will persevere. It may not seem like it right now but you are needed here, you do have a purpose. I know that your words have helped me many times that I felt like I couldn't go on just one more minute. I think of all the things that you have to go through and then kick myself for feeling so bad about my problems.

I know that you just want to get better and not hurt all the time and I pray all the time that today is the day you feel better. We aren't guaranteed tomorrow so we only need to worry about what to do today. I agree with David when he says to not let this illness defeat you or define you. Keep waking up every day and doing what you can do and to heck with what you can't. I know it's terribly frustrating to have to live with this and I am sending positive healing energy your way.

Much love and gentle hugs,
Lynn

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/21/2013 8:36 PM (GMT -6)   
Hi Lynn, Laura, David, Joy, twplowgirl, Donna, and Lynn:

You are all so good to me. Thank you so much for responding to my post and supporting me. I have had such a hard time lately. I feel so utterly alone and feel as if I'm not getting all the support that I truly need. So, it's always nice to know that I have family here at HW that support me and understand what I'm feeling.

David, I know you know what I'm going through with the QOL issues and feeling so frustrated that I'm not getting enough QOL time with my family. I just don't know what to do anymore. I just feel so dog gone bad all the time. My Rheumy truly believes it's more my leukemia that's making me feel so sickly. It's hard to accept that there's nothing my oncologist can really do for me. He's going to give me a blood transfusion on Friday so I know that will help give me some energy that I desperately need.

As for my ruptured tendons, haven't seen the surgeon yet. I will see the Dr on Friday morning and see what he recommends. I know the Dr I saw in the ER Saturday night was just a resident and his opinion may be different from the staff Dr's. If I can avoid surgery I will, but if letting my tendons heal on their own is going to take months on end, I'd rather take the chance with surgery.

My primary care Dr who handles my pain medications never checked her home email over the weekend. She didn't call me until 2pm on Monday afternoon. By that time my pain was so off the charts I never thought I'd be comfortable again. She allowed me to double my break through medications but reminded me that I will have to taper back down once I'm better.

Hubby, managed to give a shower tonight, he even managed to wash my hair. I'm so very thankful to him for that, I hadn't had a shower since Saturday morning. It's amazing what a shower will do for ones perspective on life LOL. Hubby will be home tomorrow as we are having some major repairs done to our house and there isn't anyway I can supervise the workers.

I've been able to get myself into my wheelchair everyday and push myself to the kitchen to get myself something to eat yesterday and today. It will be nice however, that hubby can do it for me tomorrow. He waits on me when he's home, but during the daytime I'm totally on my own. I even managed to make a bagel and eat it at the kitchen counter. It's harder trying to feed the cat, but he refuses to go to anyone else in the house. Plus, during the day it's me or nothing.

Well, that's about all the news here. Daughter goes back to college on Sunday, not sure if I'll be allowed to drive over with them or not. I know IF I do get to go, I won't be seeing her room, as it's on the 3rd floor and no way up there for me. Just have to wait and see what the surgeon has to say.

I want to say I'm sorry for getting so upset the other night with this thread. It just seems like every time I think I've turned the bend or got up the hill, I get shot right back down. It seems like I always have a black cloud following me and I never get a break. I KNOW that there are people out there who are worse off than me. I see young men at the military hospital everyday that are missing arms and legs and I know that's got to be so hard to deal with. However, I'm humane and I hurt too and I get frustrated as heck with my life and the illnesses that I have. I just want to be able to enjoy what time I have left of this earth and not spend it in pain all the time. So I thank each and everyone of you for supporting me and holding my hand along this journey that I'm traveling.

Hope you have a good rest of the week and I pray that you all have low pain days. I love you all and I'm so ever thankful to have you in my life.

Love,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Cateracts, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 8/21/2013 9:17 PM (GMT -6)   
It's ok, Barb. We love you and know you need to vent, just like all the rest of us at times.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/21/2013 10:31 PM (GMT -6)   
Barb, thanks for the update, I am always here for you. Enjoyed chatting with you earlier this evening, probably helped both of us.

david
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
Open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/22/2013 4:47 PM (GMT -6)   
Hang in there. We are here to lean on.
Like the old song goes "Lean on me when you're not strong. I'll be your friend. I'll help you carry on...."
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/23/2013 6:33 PM (GMT -6)   
Well I was up very early this morning to go to the Doctor. I had to be at the oncology clinic at 7:30 to get my port accessed and have them draw and type and cross for my blood transfusion. Once that was done, I went to my appointment at the Orthopedic Doctors office.

My Doctor came in with two medical students, one was from Saturday night in the ER. He asked them to remove my splint and come and get him once it was off. Well, the two young gentlemen had a heck of a time cutting it off. Good thing the scissors can't cut the patient, cause they kept hitting my skin. Finally, after about 10 minutes or so they got it off. They did an exam and went to get the Staff Doctor.

The staff Doctor can in and looked at me. I requested that if I was going to be in a cast for any length of time could he please make it a walking cast. Well, I was total NO WAY, that my toes needed to be pulled slightly towards the floor to allow the tendons to heal properly. He said I'm not a good surgical candidate and wouldn't have the tendons surgically repaired. He said I could be in a cast for 8 weeks and then a boot for another 6 weeks.

So for now, I have a lovely tie dye cast on my left foot. I will have to have the cast removed and checked in two weeks. The Doctor is worried that my skin is so thin from all my steroid use and I bruise so badly that he wants them to check my skin in two weeks. They will then put another cast on and I'll be seen again in two more weeks.

This Doctor is pretty familiar with me, as he helped repair my right foot two years ago. At least he knows that I'm sick and what my limitations are. I'm still frustrated as my daughter is leaving for college on Sunday and I'm not sure how I'm going to make it to my appointments. Hubby will try his best to help but it's gonna be hard either way.

Of course, once we got home I had a stupid accident. My daughter had fallen asleep in the chair in the family room, I was sitting on the couch. I wanted to come into my bedroom and lay down, so I tried to get myself into my wheelchair. Well, she didn't lock the chair when I got out of it and I didn't think about it being locked or not. I stood up and leaned over with my hands on the handles. My left foot slipped on the carpet, which then made me push the handles towards each other. The chair completely folded together, my right leg gave out and the chair and I fell to the floor.

The chair landed on me, I ended up with a major leg burn from my right knee to mid thigh. I cut my right knee and have a huge bruise there too. I pulled my right hamstring again and now I'm hurting right at the spot where my butt and leg attach. When hubby got home I was given a lovely lecture about safety and his peace of mind once she's gone back to school.

Of course, my fall did awaken her and she flew out of the chair worried. She picked me up off the floor and pushed me back to bed and I've not been out of my bed since. I'm so so frustrated, it's like things with my health are NEVER going to stop. It seems all I get is hit with problem after problem.

My Rheumy increased my MTX and the oncology nurse told me today that the extra 5mgs is a lot and I may experience sores in my mouth. Well guess what, I can't eat any food tonight, my mouth is killing me. The sores are all over my tongue and down the throat. Hubby has already come to bed and is asleep, and daughter is still knocked out in the chair. I'm guessing I won't be getting any ice cream for my mouth tonight cry that's usually what I use when my mouth is full of sores.

Will give you all an update later on in the weekend. I'm not sure if I'll be driving over to the college on Sunday or not. My daughter can move in on Sunday, but hubby really doesn't want me to make the trip. However, w/o us taking my jeep and his car full, she'll never get all her stuff over there.

Hope you all have a good weekend. I hope that you're not having any pain and if you're in pain that it lessens and you're able to have a good weekend. Thank you again for being us a wonderful support for me. I'm feeling very lonely and so frustrated. I truly don''t know how much more I can take. I'm ready to let go of the rope I've been holding tightly to. I just don't have much QOL and really this isn't a way to live. Please bear with me and my pity party's, it's just hard to stay positive.

Have a good night and a great weekend.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Cateracts, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 8/23/2013 8:54 PM (GMT -6)   
 
 
Hi Barbara,
 
       This is definitely the space to vent and let your feelings out.  I am truly sorry that you are having such a bad time of it.  I wonder if going with your husband and daughter is the right thing to do?  It sounds, from your heartfelt words, that you need to focus on yourself and take care of your healing.  Could your husband take the jeep?  Is there someone else that could go with them?  And is there someone that can be available for you?  I do hope that you start feeling better.  I can hear the frustration and emotion al pain in what you wrote.  I do care what happens to you.
 
Love, Laura

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/23/2013 10:51 PM (GMT -6)   
First off we've got to find the person with the voodoo doll of you and take away all of their pins.

Ouch! I know that stinking chair bit you hard! Goodness Gracious!

You need to do what my BIL does to get help around the house. He wears his phone on a lanyard around his neck. When he needs help he calls my sister who works upstairs in a office to help him. He's paralysed on one side and is prone to falls.

It stinks you have to wear a cast for 8 weeks, but at least it's tie-dyed. ;))
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 8/25/2013 1:33 PM (GMT -6)   
Barbara,

Thinking of you & your family as your daughter goes back to school today. I hope everything goes smoothly and that it's a successful day for everyone.

Prayers,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/25/2013 9:37 PM (GMT -6)   
Hey Laura, Joy, and Lynn:

Thanks for your support. Lynn thanks for wishing us well today. It was a long day but we were able to get her moved into her dorm. I of course, couldn't go up into the room Bill felt the stairs were to dangerous for me to attempt to climb.

She's in a really old dorm on the campus, I know that these dorms have old fireplaces cemented in. The school is one of the older ones in the nation so, if you have a dorm that use to have fireplaces for heat, you know the building is old LOL. My daughter seems happy with the room though.

Traffic was bad on the way over and back, but we were home by 6:30 so that's good. I'm doing alright tonight I guess, just really tired. I have an early morning appointment but at least I now know that I can get to the car on my own and drive myself to the hospital. Once I'm there and get into the front door, I can request patient escort to take me to my appointment in a wheelchair.

After my appointment tomorrow I'll come home and just rest I'm thinking. Hubby plans on fixing up the master bedroom for me so that I won't have to try to move around the house to much. He's planning on putting the chair from the living room in our bedroom and a small frig so that I'll have stuff to drink and such.

Hope you are all doing well. I'm hoping that you each had a good weekend and won't have to bad of a week ahead. Take care and I really appreciate it that you're all so supportive of me at this really difficult time for me.

Hugs,
Barbatra
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Cateracts, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/26/2013 12:14 AM (GMT -6)   
Sounds like a good plan. My sister and bil moved downstair in their formal dining room so he wouldn't have to climb the stairs to their bedroom. It has a door that can be closed on it.
I have a small frig in my bedroom for keeping my bottled water chilled and some snacks. It comes in handy.

Try to take it easy and get better soon.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/27/2013 10:12 PM (GMT -6)   
Joy,

Yep, I'm enjoying my frig in my room. Hubby doesn't have things down pat yet but he's getting there. Tonight he didn't load it with food for tomorrow, will see what happens when he gets up. I know he's overwhelmed with everything. When I'm up on my own and can do for myself things seem to just naturally run smoother in the house LOL.

So far my week has been tough. I saw my GYN/ONCOLOGIST on Monday. He's been treating me for a condition for the past 10 weeks and things are just not going well. So he's decided that I'm going to require surgery after all skull skull Surgery date is Sept 25th and I'll stay overnight hopefully only one night. That's if all goes well and I'm cleared for surgery. Still need to see several of my specialist prior to my pre-op stuff being done.

Of course, with me in a cast I'm certainly not looking forward to having GYN surgery, but it's necessary and and has to be done ASAP. I go to my pulmonary doctor next Wednesday, to try to figure out what's growing in both my lungs. I'm actually very worried I've got some type of fungal infection in there. I have to say though, I'm going to refuse a scope of the lungs unless the totally put me under with general anesthesia. I just can't anymore invasive procedure that hurt and feel terrible.

I'm managing alright on my own here at home, but I'm hoping that tomorrow when hubby gets home, I can talk him into helping me get a shower/bath somehow. Just wiping off with a sink of water isn't the same nono nono nono Thinking about purchasing some cast covers I found on the internet to allow me to shower. They say you can swim with them too, the reviews I've read have been good. Has anyone tried these?

Well that's mostly my update here. Daughter is now gone off to school and it's back to us old folks in the house LOL. Hard to believe that September 1 is just at the end of the week. Summer sure did fly by. Hope everyone has a good rest of the week. Take care and may you have low pain days.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Cateracts, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/27/2013 11:25 PM (GMT -6)   
The doctors sure are working on you a lot lately.
Leave a little reminder note for hubby to leave you some food.

I've seen those cast covers in some pharmacies that sell durable medical supplies.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))
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