My husband has been somewhat supportive of me since I was diagnosed but yet there were days that he would get upset with me because when he is home he wants to go out running around and I just couldn't stay out for very long and if we did go out I will have to go to bed and sleep for a few hours. I am photosensitive to the point that even with my heavy duty sunscreen I would still break out in a small rash and hurt and feel like crap. He would get upset if during the day I would get weak and need to lay down and sleep at different times.
Well, when he went back out on the road again, (he's a truck driver and stays out several weeks at a time) and I made him take a Lupus book with him. He has been reading it and asking me questions. He seriously acts like he is starting to half way understand but 2 nights ago really clenched it for him.
He met a couple who is driving truck. The lady is 68 years old and is a retired nurse who just happened to have worked for a rheumatologist for 30 years. She has seen her share of Lupus patients the good and the very bad.
He met them at a truck stop and struck up a conversation and he talked to her for a couple of hours. He asked her a bunch of questions and she told him both the good and bad and he realized that I knew what I was talking about.
He has apologized to me for not believing me and he told me he understands that my body is sick and when I need to sleep sleep.
I've been having problems with getting a referral to a rheumatologist and he told me not to worry about it. This lady gave him a phone number to a rheumatologist here close to our town that specializes in Lupus. So he called my GP dr to get a referral to this rheumy. As of 2 pm my files are in the office for this rheumy to look over.
I've only been trying to get a referral to a rheumy for nearly 6 months now and he did it in about 3 hours.
And the real biggie. He is no longer hounding me about going back out on the truck to ride with him. He didn't believe me or the dr telling him that it could make my lupus worse or even possibly cause me to have a stoke, heart attack or seizures. Those run in my family bad. I don't know why he believed this lady when he wouldn't believe my dr. or me but I'm just thanking the good lord that he finally opened his eyes. Now I can relax some.