Hi all. I have been popping in on occasion to see how everyone is doing. I see some are better and some are not. (((hugs))) to all anyway.
I was starting to do really well. My energy was coming back, and even though I have been battling a nasty infection in my mouth and other areas, everything was going pretty good. I started PT and my back is starting to not hurt, and like I said, I have had energy... until a few days ago. I saw the flair start to hit several weeks ago with the cyclical peeling of the skin on my hands. A steroid cream slowed it and it did not get raw like it normally does, but it still peeled. Then my hair started to fall out again. It was shortly after that that the tired hit. I am sitting her now wondering if I should take a nap or drink some coffee.
I don't want to be laid up in bed again. I want to be a band mom and help out with my kids. I want to not have a blown up house because I have no energy. I don't want this to happen again. :(
I am also developing arthritis in at least my left ankle (maybe the right too - they are making assumptions with that one) and x-rays show it in my left knee. This is a pain (figuratively and literally). Ugh.
Frequent lurker... Part time poster.
Hypothyroid, Hypermobility, Depression?, PTSD, Anxiety, Autism (high functioning), Retinal Issues, Migraines, UCTD, Skin Problems, and Gastric Bypass Surgery. Suspected: Lupus, Sjögren's and Fibromyalgia, POTS, Small Fiber Neuropathy, Epilepsy, Endolymphatic Hydrops, and whatever they decide next.