Hi everyone! *waves*... again

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SoSt9
Regular Member


Date Joined May 2012
Total Posts : 277
   Posted 8/29/2013 6:59 AM (GMT -6)   
Hi all. I have been popping in on occasion to see how everyone is doing. I see some are better and some are not. (((hugs))) to all anyway.

I was starting to do really well. My energy was coming back, and even though I have been battling a nasty infection in my mouth and other areas, everything was going pretty good. I started PT and my back is starting to not hurt, and like I said, I have had energy... until a few days ago. I saw the flair start to hit several weeks ago with the cyclical peeling of the skin on my hands. A steroid cream slowed it and it did not get raw like it normally does, but it still peeled. Then my hair started to fall out again. It was shortly after that that the tired hit. I am sitting her now wondering if I should take a nap or drink some coffee.

I don't want to be laid up in bed again. I want to be a band mom and help out with my kids. I want to not have a blown up house because I have no energy. I don't want this to happen again. :(

I am also developing arthritis in at least my left ankle (maybe the right too - they are making assumptions with that one) and x-rays show it in my left knee. This is a pain (figuratively and literally). Ugh.
Frequent lurker... Part time poster.
I
Hypothyroid, Hypermobility, Depression?, PTSD, Anxiety, Autism (high functioning), Retinal Issues, Migraines, UCTD, Skin Problems, and Gastric Bypass Surgery. Suspected: Lupus, Sjögren's and Fibromyalgia, POTS, Small Fiber Neuropathy, Epilepsy, Endolymphatic Hydrops, and whatever they decide next.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 8/29/2013 7:50 AM (GMT -6)   
Hi Sost9 part time lurker! I sure hope you're not heading for a major flare, but it looks that way doesn't it? Are you on plaquenil and/or other lupus meds? If you aren't, it might be wise to start to beat this flare, or change your meds. I'm sending (((HUGS)))) back to you along with what positive energy I can muster. Perhaps this cup of coffee I'm drinking will increase my energy smilewinkgrin   Love, Butterflake
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, diastolic heart failure, GERD, 1st stage kidney disease. Many meds: better living through chemistry

Donna
Sjogren's Moderator

SoSt9
Regular Member


Date Joined May 2012
Total Posts : 277
   Posted 8/29/2013 8:52 AM (GMT -6)   
:) Thanks Butterflake! I am on Plaquenil, but he only upped the dose to 400mg the last time I saw him (back in May I believe). I know that one takes a while to work. I think right now, they are trying to just figure me out. Maybe being in a flair will be good this time around I see him next week, so if he actually sees me like this, maybe there will be enough there for an actual diagnosis. I can hope at least. :)
Frequent lurker... Part time poster.
Hypothyroid, Hypermobility, Depression?, PTSD, Anxiety, Autism (high functioning), Retinal Issues, Migraines, UCTD, Skin Problems, and Gastric Bypass Surgery. Suspected: Lupus, Sjögren's and Fibromyalgia, Epilepsy, Endolymphatic Hydrops, and whatever they decide next.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/30/2013 12:31 AM (GMT -6)   
Old Retired Sailor! (Long time no see). ;))

Sorry you're feeling poorly. It's aggrevating when things start fussing at us again after things being so quiet.

Right now my allergies are giving me fits with coughing, sneezing, and a sore throat. I don't like fall because of the rag weeds.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))
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