Posted 9/13/2013 8:57 AM (GMT -7)
I wonder what kind of doctors we have as well.
I am 57, and since 2002 my immune system has been showing me just who is controlling my life.
All of a sudden no more french fries, pistacchios, and a long list of other foods I have eaten all my life.
Airborne allergies? all of them!
And then during my allergy re-testing in Dec 2012, the head doctor tells me, "oh, by the way you have Lupus."
I sat there like a smart-dummy, nodding agreeably like I knew what he was talking about and figuring that any moment he would tell me about it and give me some brochures, at the least.
He told me to come back in 3 weeks and at that time the RA doctor on his staff would set up a treatment plan.
I showed up, and the RA doctor asked, "and what are we seeing you for today?"
Scream? No, but I felt like bouncing my head off his cabinet just in case my ears were clogged.
I told him patiently, since I was a patient, and he looked on the computer and shook his head and said he wanted to do another blood test in 6 months.
They are already treating me for Reactive arthritis and osteo-arthritis, and they know the list of physical complaints I have; so I said see you in July. What else could I do?
I saw them in July, took the blood test and they haven't called which they said they would if the results were positive.
I thought they would be positive, for instance today I have had so many heat flashes that I am convinced there must be a solar storm aimed at me.
Unusually, I also have needed to go pee about every five minutes for about 2 seconds, my face feels like it's being torched, my feet feel like they've been hammered, and although it's morning I think I could use a nap.
Maybe it's me, maybe my immune system is playing, 'let's screw with his head today' when there is nothing wrong, or maybe there is something wrong and my doctors are useless to me.
More questions than answers, but skin problems, infections, pain, fatigue, half of a butterfly rash only, heat flashes, urination problems once in awhile have me convinced that it could be lupus, since I can't quite pin the problems I have to anything else.
I hope the allergy doctor will at least have something to say to me in three weeks, because it's 6 weeks before I see the RA again, and I am confused, uncertain, and feeling a little lonely on a planet with 6 billion residents.