Questions about Lupus/Drug Induced Lupus

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indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 9/4/2013 2:48 AM (GMT -6)   
I was recently diagnosed with drug induced Lupus, most likely due to the medication I have been taking to control my Crohn's Disease.  My Rheumatologist told me there's a chance the Lupus could go away after stopping the drug, but there's also a chance it may not go away and it may be something I live with.  I am hoping someone here can help me with some questions.  I've had horrible pain, swelling, and redness which started in my foot and has moved up to my ankle.  The doctor believes it's from Lupus.  Can the pain from Lupus be excruciating at times?  I've also had fevers (24/7 if not treated with tylenol, ibuprofen, and prednisone), fatigue, and some days I feel much worse than others.  I don't know if this matters or not, but my ANA test came back at >1:1280.  Has anyone here been diagnosed with drug induced Lupus that has never gone away?  Please know, any comments or help you may have will be greatly appreciated as I am new to this and quite honestly, afraid... 

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/4/2013 3:18 AM (GMT -6)   
I've heard that if you stop the medication that is causing you lupus it will go away eventually.

Yes, lupus can hurt when your joints are inflamed. I use heating pads, ice packs, and muscle rubs. I take hot showers to ease the tenderness.

If you do have the type that won't go away it's not a death sentence. With proper care and medications you can live a long and fruitful life.
You just need to learn to adjust to a new way of life.
Have you read lupus.org? It has some wonderful tips and information.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Post Edited (couchtater) : 9/4/2013 2:23:47 AM (GMT-6)


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1344
   Posted 9/4/2013 10:56 PM (GMT -6)   
Information on drug induced lupus.

http://www.lupus.org/webmodules/webarticlesnet/templates/new_aboutaffects.aspx?articleid=377&zoneid=17
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7164
   Posted 9/6/2013 4:17 PM (GMT -6)   
Did you read my reply to your similar question here: http://www.healingwell.com/community/default.aspx?f=17&m=2838401
Moderator Crohn's disease, Osteoarthritis and Irritable Bowel Forums

CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 562
   Posted 9/14/2013 5:35 PM (GMT -6)   
It took a year but it eventually went away. The only thing that helped was prednisone and MTX. The pain was horrible. (((hugs))) to you.

Julia
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