Have you been diagnosed with Lupus? By a rheumotologist? Are you being treated by ONLY prednisone?
It sounds like you need additional treatment - if you have Lupus I'm surprised you are not on Plaquenil. And if prednisone is tapered without any treatment beyond that the inflammation is very likely to come back. Most people are started on Plaquenil immediately to control disease progression, Prednsione to control inflammation. Remaining symptoms can require using Imuran, Cellcept, MTX, etc to control them.
Are you getting deep restorative sleep at might? Eating well? Getting some light exercise? You might need a sleep study, and anti-depressant, etc.
Perhaps you should consider a second opinion from another Rheumy? One way to get a knowledgeable rheumy is to visit www.lupus.org
, locate your local chapter, then call and ask about
what local Drs are on their advisory board. These are the Drs most interested in and experienced with Lupus.
Lynnwood, Lupus & Sjogren's ModeratorDIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde