Morning Joy and Sandra,
Joy, you are so right I was thrilled to get the cast off. Took a long shower tonight and scrubbed gently trying to get all my flakey dead skin off my leg. Still not thrilled that I have to stay non weight bearing for two more weeks.
My poor back and hips hurt like heck from using the crutches. After the two weeks pass I can begin to walk full weight. As long as I don't have pain I can stay off the crutches.
Sandra, I appreciate all your support. I do remember that you emailed me. I responded to your email, did you not receive it? If you didn't get it please let me know and I'll send another one to you.
There isn't a problem at all for you to post here. Us lupus folks are pretty laid back and never judge anyone. So, please feel free to post anytime.
Today, my husband and I went for my consultation with a radiation oncologist at the U of MD Med Ctr. They are looking into starting radiation treatments on my thumb again, to treat the HUGE wart on my thumb.
I originally did 5 sessions at Walter Reed and it worked really well, but once I stopped treatment the wart grew back. My Derm feels I needed more radiation to get rid of it.
The military Dr refused to give me anymore so the Derm referred me to a colleague of his. Looks like they will restart treatment in a couple of weeks. Said that everyone there had reviewed my case, and I'm a VERY complex patient.
All the radiation oncologists will sit down and figure out how best to treat me again. I was told that I could potentially lose the tip of the thumb. I said I understood and that I had already asked to have that thumb amputated since its useless. Will let you know when I'll start treatment again.
Other than that taking all day, I have just been really wiped out. My oxygen levels were pretty low at UMMC, I'm not sure what's going to happen. I see my oncologist on the 24th. He's away TDY (temporary duty) at another military facility in TX. He hasn't returned my email
but my Cardiologigst called me and he spoke with my pulmonary Dr and reviewed all my labs and echo. Everyone, except for my oncologist, he's not here, say that all my symptoms are leukemia related.
I've been told to rest as much as possible and stay away from large crowds. Basically, not a lot to do at this time. Well, I'm gonna try to sleep some. I hope all my favorite folks are sound asleep by now. Hope everyone wakes up feeling good.
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.
Post Edited (Barbara Lee) : 9/20/2013 12:30:19 AM (GMT-6)